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Acute Reaction To Reclast Infusion
Omg you guys. I had a 2:30 pm Reclast Infusion yesterday. I noticed the first 1/4 of the 5 mg bag dripping slowly. Then, all of a sudden, it poured rapidly from the middle of the bag to the end. Despite my calling 4 times for the nurse! It was started at 3:55 and ended at 3:07!!!!!! Less than 15 minutes. She was like, you berm in here for 30, I was like nit with an IV in my arm. Took them a long time to find my IV bag. I felt spacey when I left. Didn’t even want to get this done. I backed out the first time it was scheduled from fear. Then husband kept telling me that he was concerned of me breaking my left hip or lumbar spine while we were retired and camping next year. So I rescheduled! NEVER EVER EVER AGAIN! I fell asleep in the recliner last night. Got up at 3:40, used bathroom, crawled into bed. I woke up with chills, changed pillows twice, and peed twice. Then I got up at 10 am and I was dizzy and passing out, walked into the wall twice, left cellphone above my head in bed. I was now in the living room unable to see. I ran into the bathroom because I thought I was going to vomit, (which I don’t do) I had dry heaves 3 times and then diarrhea. I immediately took a 600 mg calcium and drank a propel. Text my husband come home. And what happened. Went to ER to get calcium and kidney levels checked. Thank Jesus they were good! But the first 1-3 days after the infusion are supposed to be worse. So I am unaware what tomorrow and Friday will hold. The ER told me I did the right thing coming in, and IF it comes back to come back in. They said acute they can fix, chronic not so much. They said my quick thinking probably worked with the calcium pill and Propel. I started taking vitamin k-2 and vitamin d and magnesium, and eating prunes and plums as an alternative to bisophates. Trouble is takes 2 years, (the date of my next bone density scan), so I felt I had to do at least 1 Reclast now. Dr wanted me to do 18 months of daily Fosomax SHOTS, I said no. (Vitamin k-2 grew my eyebrows back in in only 1 month!!!! They have been 1970 thin for 44 years!!! And magnesium. Me and hubby were taking 1/4 a night of magnesium and it grew thick hair back on the top and crown on his head, he’s been balding 45 years!!!!!
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Gosh this is really scary. My endocrinologist just had a conversation with me about possibly taking Reclast. I asked her what the side effects are and she said you can feel unwell for 24 hours or so and in rare cases you can get the haw problems. However, I have a kidney disease and she said Reclast can impact the kidneys. Do you currently have osteoporosis or osteopenia? I ask because I have osteopenia and we discussed the option of waiting another year or going on Fosamax or some other pill option.
I am against infusions like Reclast for the exact reason described by the OP: if you have a reaction, there isn't any way to undo the infusion. Reclast is a very powerful drug, given that one infusion is supposed to last you a long time. I'd rather take a weekly pill like Fosamax, which so far is working out for me.
I get that some people have issues with Fosamax, though. You're often trapped between a rock and a hard place with these drugs.
@vegada osteoporosis is. You cannot do any of them IF you have kidney problems
@njx58 correct.
@vegada do NOT recommend it. I know a woman that had 4 in 9 years with nothing more than a headache the first time. Now she is telling me she has A Fib and has to have her heart stopped and restarted.
@askjewels Thanks for responding. I was just diagnosed with AFIB and it is mild at this point. My biggest concern is what is the best option at this time given my kidney disease and the fact that I have one more year on anastrozole. I think I am not going to take any meds/infusions and work with my physical therapist to build muscle and hopefully improve my bone density. Did your doctor check your bone markers (CTX and P1NP)? Mine did and i have a 1,340 CTX and an 87 P1NP result.
Not yet, as I just got diagnosed last August 28th. But I take: calcium, magnesium, vit k-2/d3 combo, eat a prune/plum daily. I read that in place of bisophonates, you can eat 5-6 prunes daily. Thing is, I think that I’d have diarrhea, because I drink some prune juice when I feel backed up and it softens.
What I am doing will not show results until my second bone density scan August 2027.