Acromegaly Information

Does anyone here have a success story with Acromegaly?

All the answers I've seen here are 5 years old. I don't even know if anyone will ever see this.
It's a shot in the dark.
2016- I had my baby and couldn't make milk. So I went to my OB and he ran an IGF-1 and had me do an MRI of my pituitary.
At the time, my IGF-1 was 312, and MRI was positive for a 3mm microadenoma.
No one discussed these results with me besides saying I likely will have a hard time losing weight in the future.
-fir 9 years I have made a huge concerted effort to lose weight, have tried everything from Atkin's, Jenny Craig, weight Watchers on down to Keto and Bright Line eating...things no one has ever heard of. Even the HCG diet.
2023- Something in my body broke even more, I felt half crazy, gained another 20lbs, my PCP sent me for an MRI which did not show the adenoma, so she put me on Xanax.
2024-I we t to bariatric endocrinology, IGF-1 at that time measures 170's. She tried to convince me to get bariatric surgery, but considering I was only eating 900-1,100 a day with exercise, I knew the amount I ate wasn't the problem...
I got on Semiglutide and took it for about a year and 1/2, I lost 24lbs and my legs ankles stopped swelling as much as they were previously. They were described by my co-workers at the hospital as over proofed biscuits over the edges of my shoes.

I wasn't losing anyore weight and figured the $299/mo was a waste. The swelling came back within 3 weeks time, with a vengeance.
I went back to my PCP, but she wasn't available so I saw someone else there...
He was the one that finally referred me back to endocrinology.

09/2025- new MRI shows a 4mm adenoma on the adenohypophysis (stalk), and my IGF-1 is still elevated at 240 with my cortisol at 32. Previously in 2016 cortisol was 70.

I have my first follow-up appointment after the recent MRI on Wednesday the Wrath of Sept. 9am PST.

My sister had this same issue, pituitary growth hormone adenoma causing Acromegaly. She is no longer with us...

I need a success story,... I'm so frightened...