Aches and pains in the bones

Posted by karendb @karendb, Jan 29 8:33pm

Hi everyone. I haven’t been on for awhile so I’ll start with the good news. Had my first post cancer mammogram and it came back clear! Yay! Now for the yucky bit. I’ve been on AI for almost a year now and have had minor aches and pains up till now. Lately my bones ache in the oddest places like midway from my knee to my ankle and my arm (the side I had lumpectomy on) feels like it’s gonna break. My neck gets sore in the back too. It feels like my head is too heavy for it. Sounds nuts I know but some days I have such fear… also near the spot that the lumpectomy was done it is always sore and achy even just to touch the skin. Did anyone else suffer from AI like this? I mean I’ve been on it for almost a year and it’s never gotten bad till now. Just concerned it may not be the AI causing these new aches and pains.

Liked by Dee, sparklegram

Karen, which AI are you taking? I would strongly advise you to make an appointment and have a talk with your Oncologist. You symptoms do sound like side effects from arimidex or really some of the other drugs, too. I had those same ones on Arimidex and a bit on Exemestan (only not so much on that one) I'm currently trying Tamoxifen. We'll see! Maybe your doctor will have some advice for you.

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@sparklegram
For what it's worth, I have almost the exact same arthralgia aches and pains from anastozole (and probably from some osteoarthritis), but I don't hesitate to mention it, each time I'm at the oncologist office. They mark it down… LOL… and I comment that I feel like I'm 100 years old. I have noticed that the ache in my tibia, thankfully, no longer presents itself during this second year. I hope that you, too will notice little improvements along the way (because we need SOMETHING to celebrate!)

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@elizm

@sparklegram
For what it's worth, I have almost the exact same arthralgia aches and pains from anastozole (and probably from some osteoarthritis), but I don't hesitate to mention it, each time I'm at the oncologist office. They mark it down… LOL… and I comment that I feel like I'm 100 years old. I have noticed that the ache in my tibia, thankfully, no longer presents itself during this second year. I hope that you, too will notice little improvements along the way (because we need SOMETHING to celebrate!)

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@elizm, Yes we do need something to celebrate! Thank you! I'm 75 and anastozole made me feel 175! (also some osteoarthritis) I love this site. it makes me know I'm not alone, or imagining things!

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@sparklegram

Karen, which AI are you taking? I would strongly advise you to make an appointment and have a talk with your Oncologist. You symptoms do sound like side effects from arimidex or really some of the other drugs, too. I had those same ones on Arimidex and a bit on Exemestan (only not so much on that one) I'm currently trying Tamoxifen. We'll see! Maybe your doctor will have some advice for you.

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Hi. I’m on Anastrozol.

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And…after I had completed chemo and radiation I saw my oncologist and she said ok Karen we’ll see you in 2024. So that being said, I only see my regular doctor.

Liked by sparklegram

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@karendb

And…after I had completed chemo and radiation I saw my oncologist and she said ok Karen we’ll see you in 2024. So that being said, I only see my regular doctor.

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Hmmmmm. Is that unusual ? My Oncologist wants to see me every 6 months.

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You know, I asked her why in 5 years and she said she’d only need to see me if a problem arose or If my family dr Wanted me to see her.

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Maybe that’s how they do things in Canada! Lol.

Liked by sparklegram

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@karendb

Maybe that’s how they do things in Canada! Lol.

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Wow! I'm concerned!

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@sparklegram

Hmmmmm. Is that unusual ? My Oncologist wants to see me every 6 months.

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@sparklegram @karendb
I see either my oncologist or the nurse practioner every three months, but I'm guessing that that's because I'm regarded as high risk for recurrence (HER2+++). Perhaps Karen is low risk for recurrence. In any event, don't feel like you can't book a follow-up every year… tell her you want a breast exam, for example, or that you feel a lump which you want her to check out. If you're as lumpy as I am, there are plenty to choose from!

Liked by sparklegram

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I took Letrozole for 2 years and switched because I felt 100 and just felt awful, flu like. Switched to Exemestane. After a year most of previous symptoms returned. Not quite as stiff. I took 4 days off per my docs instruction and it sort of reset things. Went 6 months symptom free. Things have gotten better but when I feel fluish, achy if I go walk for an hour I feel much better for days. Exercise is key for me. Stiff though. Just thankful for the meds. Had a friend die from breast cancer years ago just as the tamoxifin was coming out but still in trials. She finally got on it after a fight but only a few months before she died. Thankful to have them but they sure make you feel bad at times.

Liked by sparklegram

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Thanx guys. I see my family dr tomorrow so I’ll double check with him again. They did say the cancer was so small they couldn’t even see it, less than 1 cm. But it had gone into 1 lymph node. They didn’t say I was high or low risk. Just that they got it all and to take anastrozol for 5 years and see her in 2024. I don’t know what I should do now.

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@karendb

Thanx guys. I see my family dr tomorrow so I’ll double check with him again. They did say the cancer was so small they couldn’t even see it, less than 1 cm. But it had gone into 1 lymph node. They didn’t say I was high or low risk. Just that they got it all and to take anastrozol for 5 years and see her in 2024. I don’t know what I should do now.

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You should request geonomic testing on your tumor. My oncologist says all tomors are frozen so lab should have it. Can be done at later date so still available. That test can help you know if your tumor is aggressive and if you know your risk. Insurance pays for it. If in 1 lymph node I am sure it would qualify under ins. Check it out.

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@sparklegram

Hmmmmm. Is that unusual ? My Oncologist wants to see me every 6 months.

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I see my oncologist every 6 months and I am 6 years out but fell in high end of low recurrences on geonomic test. 2 lymph nodes positive

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Bottom line is “Cancer Sucks”!!! We no longer have the choices for a healthy body that we used to have. AI’s are currently our best chance for longer term survival by keeping our breast cancer from recurrence; however, the side effects are very challenging to live with. So far, our choices are very few for alternative treatment that is as effective. Until the medical community finds a better alternative, this is all we have. I’ve been on Anastrozole, Tomoxifin, and now Exemestane. My worst symptom is ‘brain fog’. I can deal with the aches and pains, but not being able to think straight or the forgetfulness drives me crazy!!! Those side effects were the worst on Anastrozole, and not much better on Tomoxifin. Exemestane so far has been better for the brain fog, but I do have joint pain. I’ve done yoga for a little over 25 years, and that helps… but some days I hurt so bad that even my yoga practice isn’t any fun anymore. But I’m alive, cancer free, and able to enjoy the company of my family. I only have one grandchild, and she is the joy of my life! I’ll figure out how to put up with the aches and pains… considering the alternative of cancer recurrence! But I certainly don’t like it one little bit!!!

Liked by sparklegram

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