abnormal emg and thoughts about genetic testing?

Posted by bprather @bprather, 9 hours ago

hey i’m 25 year old female i have been here in scottsdale for a couple days at the mayo clinic. my EMG was very weird via the doctors and said something about increased insertional activity they want me to get genetic testing which im not sure about im wondering if anyone has gotten it done i also tested positive for MI-2 which strongly relates to dermatomyositis and i was supposed to get a muscle biopsy done but now they don’t think it’s myositis and think it’s more genetic no one in my family has any genetic muscle disease. wondering if anyone can relate im feeling a little hopeless and scared.

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laura1970 | @laura1970 | 8 hours ago

I had genetic testing for cardiac issues and a very strong family history of Alzheimer’s. I am quite a bit older than you. What my brother and I decided was to have the testing and if positive (his is positive, mine is pending) to treat our kids as though it is positive in them as well, not getting them tested. This does not really relate to you I know. But the reason is, once a genetic test is positive it must be reported on life insurance applications and such. At only 25, you may not have life insurance. I would discuss with your insurance broker and if you can afford life insurance, and foresee needing it in your future (plans for kids), get it now before having the testing.

That having been said, if you need genetic testing, you need it.