90 with neuropathy
Hello all, I have neuropathy that seems to have spread all over my body. I also have double sciatica due to 4L and 5L fractured degeneration I also have Arthritis I have a prolapsed bladder and postnasal drip-Take Medication for hypertension as well-The neuropathy seems to have affected my digestion and everything else around it-Guess you could say I’m a hot mess! I have been diagnosed on everything but the neuropathy, but I don’t need to be because it’s very obvious what it is-I have tried to handle it on my own up to this point but now I think I need to go to a specialty clinic-living with the pain has become very difficult mainly because it keeps me from sleeping at night. does anyone have any suggestions as to where I could start looking for help? I am so fearful of medication. The only thing I take is one Tylenol a day and every now and then lorazepam when I must get some sleep. I am too old for surgeries, so I have to try any holistic method available -do any of you have hypertension and if so, which pain relieving gel do you find most effective as not to raise your blood pressure? Needless to say my balance and walking ability is for the birds still I keep trying to maintain myself my home and my little Yorky, I have been blessed with a long life, but the price is pretty hefty. Anyone else fighting several different maladies love to hear from you merry Christmas and a happy new year if possible.
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Good morning, nervesareus01 (@nervesareus01), and a Merry Christmas to you, too.
I'll say up-front that I don't have a good answer to your question, but, as I see your post is new and has yet to receive any replies, I want at least to say "Welcome to Connect!" I know that you'll soon be receiving replies, which I, too, look forward to reading.
I've often thought of my own health as a conspiracy of ailments. I've not the number of difficulties you have; nonetheless, I've a "collection," beginning with my foundational neurological woe: chronic idiopathic axonal polyneuropathy (no pain – for which I'm exceedingly grateful! – but oodles of balance issues); add to my CIAP, a wildfire of arthritis and the all-too-usual exceteras.
But enough about me. To close, allow me to say again, "Welcome to Connect!", nervesareus01. I'll be checking back later to see what others have to say in reply to your post.
Merry Christmas!
Ray (@ray666)
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4 ReactionsHello @nervesareus01, I want to add my welcome to Connect and Merry Christmas! along with Ray @ray666 and others. I'm 82 and can relate to being a mess of sorts but still looking forward to making it to my 90s so a big congratulations to you! I once heard an 80 something year old neurologist at the Minnesota Neuropathy Association say if you live long enough you will have neuropathy as nerve cells die sooner or later like every other cell in your body. I also have to take blood pressure medications for primary aldosteronism to treat the hypertension causing the high blood pressure. I also have to take Eliquis twice daily due to having a couple of blood clots a few years back. I'm with you on not wanting to take more medications unless it's absolutely necessary.
If you are looking for a few more suggestions on living well for your neuropathy, there is some really good information on the Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/living-well/.
It sounds like trouble getting a good nights sleep is one of your biggest daily challenges. Have you seen the Sleep Health discussions here on Connect? Here's a search of Connect for "sleep what helps" that has over 500 related discussions if you would like to scan through them - https://connect.mayoclinic.org/search/discussions/
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8 ReactionsWishing you a Merry Christmas to you and your Yorky. I hope you find answers to your issues. Balance can be challenging as we get older--try to work on foot alignment--you can even do that while holding on to a chair. Be patient with yourself--our bodies can change but time is needed for that. You may not experience huge transformations but little by little improvements may come. Also, eat healthy foods as our guts control alot of what we feel.
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2 ReactionsThank you so much for your holiday greetings-I wish you a joyous holiday as well-it is very difficult to train your mind to cooperate with your body as opposed to forcing it to try to do everything you always did as a younger version of yourself-that is my problem. My mind keeps chastising my body and just dragging it along lol. Need to slow down and smell the roses. We all know roses have thorns on the branches, so we must be careful-pain is not pretty and i am grateful for a moment or two when you find yourself in a position where nothing is hurting—Wishing you more of those moments as well as myself
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1 Reaction@ray666 hi Ray, thank you so much for being one of the first to welcome me! a happy holiday to you as well! oh my yes you can thank your lucky stars you don’t have pain -I would far rather be totally numb than have pain. Unfortunately we don’t get to pick what we are given or the degree to which it is bestowed. However, I do find that the price of longevity for many of us is quite hefty. So far I’ll take it over the alternative 🙂 they say in exercising” no pain no gain” I think for those with neuropathy no pain is a big gain! I look forward to interacting with you and the others on the board and perhaps exchanging helpful tips to make life a little more manageable
@johnbishop Thank you so much John for the informative sites. I will definitely go on and check them out. also, thank you for the welcome-I look forward to interacting with some of the members and perhaps we can discover Little miracles for one another-Holidays and take care
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1 ReactionHello, @nervesareus01
Yes, let's do keep in touch. This forum, as I have learned, is a wonderful place to learn, share, lessen the feeling that one is alone with his or her malady.
I apologize for this being so short, but supper calls. 🙂
Cheers!
Ray (@ray666)
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1 Reaction@johnbishop
Thank you so much for providing the link to the Foundation for Peripheral Neuropathy website. I have browsed through some of the topics and am pleasantly surprised at the wealth of information provided in terms of alternative treatment. I, too, avoid taking any prescription drugs, unless absolutely necessary. I find the Food Shopping Guide particularly interesting, as there are many foods on the list, I believe will be helpful if incorporated into the diet. We could ultimately gain more benefits from eating properly, which, of course, isn't always easy to do. But I am committed to trying. Wishing everyone well and safe as we approach the new year and beyond. Blessings!
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4 Reactions@pua0609, The Foundation for Peripheral Neuropathy also has a great YouTube Channel where they keep all of their webinars that you can watch. Here are some of the webinars that discuss alternative therapies - https://www.youtube.com/@foundationforperipheralneu4122/search.
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4 Reactions@johnbishop
Thank you so much!
Blessings.
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