59 and severe osteopororsis

Regardless of what medicine you choose, remember the ultimate goal is to reduce fractures. I would recommend a complete physical with attention to fall risks. And a vision check from an optometrist or ophthalmologist. If risk of falls found, try to eliminate environmental fall risks: area rugs, poor lighting, Slippery or uneven surfaces, such as wet floors bathtubs or cracked sidewalks, Loose or uneven floorboards or carpeting, Obstacles like furniture, electrical cords, and boxes in walking paths. Studies show that programs targeting removal of environmental hazards in homes can reduce falls by about 26% and up to 38% in high-risk individuals.

Xia, hi.
Tymlos is a really good drug. Because it leaves your system very quickly, if you have a bad reaction you won't suffer very long. Then you just quit the drug and join me on Forteo, and become indestructible.
Some are starting at a lower dose on Tymlos so their bodies can adjust slowly. But some stay at a lower dose and still have good results.
You might ask your prescribing doctor for bone markers CTX and at least P1NP. It would be maddening to take a drug for a year and then find out it wasn't effective. P1NP should rise dramatically in the first month
Because of the way dexa measures bone your actual numbers may be a little better than the measurements
allow, if you are small boned.
It is scary when you get the news, but you are on the best path.
You could avoid bending at the waist as much as you can. Twisting at the waist is also best left until your lumbar spine is stronger. Twisting and bending at the same time can really do you in. Also avoid lifting, especially from the floor.
They've extended the use of Forteo, and it's expected to be extended for Tymlos as well. The language has changed. Tymlos isn't restricted now, but it is advised that it be restricted to two years. Doctors here are prescribing both Tymlos and Forteo for extended use.
Welcome to connect. Stick around we have all kinds of advice.

Thanks for the answer, do you think it will be possible if it works to stay on tymlos or the other drug you mentioned indefinitely? I cannot take the bisphosphates at all, so i dont know what will happen if I have to get off tymlos. People talk about getting on something like prolia or reclast but I cant even my doctor and dentist say it would be very risky. I have a lot of pain in my bones but scans only show degenerative changes no breaks or anything just osteoarthritis. and some sacral degeneration

Yes in the last year I have noticed im so frail when walking, im only 59 but wobble and walk like im 80! Im trying to get better at balance and posture , its really hard work, I never realized how bad i sit and stand! all hunched and leaning forward. I had 2 falls that were not fragility realated one on the ice and one down the stairs in the last 4 years. Broke my foot and the other one broke my rib and my hand

Focused physical therapy, when done correctly, can have lasting effects on balance and posture. Remember to keep doing the exercises after the PT is over. Get a PT with experience working with OP patients and with fall risks (it sounds like you have some).

Also might evaluate the lighting on your stairs.

Xia, when I started Forteo, my (very good) endocrinologist insisted that I would have to go on Reclast after. The black box had already been lifted and I thought (but didn't say) that in two years I would have to find another physician. Unexpectedly, after two years, he said that I could stay on Forteo till the dexa read -1, which I means Forteo will be my only osteoporosis medications. Another 26 years I'm thinking.
I'm almost on month 30 and I so like this drug. I have no side effects. And I'm confident, by mechanism, that it is building the best bone.
In two years we will know more about extended use of these two drugs, the monoclonals Prolia, and Evenity may have proven their worth, there may be new, better medications available. By then your lumbar score will be -2 and you'll be exercising with weights, without fear, and feeling strong.

Hi Xia,

Welcome. You've come to the right place. Lots of experience and wisdom here. Here is a question. Since you are in menopause could you be a candidate for hormone replacement? It will not reverse osteoporosis but it can offer your body some support.

Maybe hormone replacement therapy is an option? It helps to retain bone gains from Tymlos.

Has your doctor tested you for hyperparathyroid issues? This can be found through blood work to check your PTH and calcium levels. If that is found to contribute to your osteoporosis, my doctor said Tymlos and Forteo should not be prescribed because they work through your parathyroid.