4 treatment options from my doctor, which one should I start with?

Finished my first treatment today from 8 am to 1 pm. All side effects didn't happened to me surprisingly. They may take a time. Will see.

Hi jlu & sandy: I completed PRRT therapy (lutathera) a little over a year ago at Mayo, Arizona so can respond with what to expect from that perspective. It is a long (about 5-6 hours total) day, but in my case not painful or difficult. The procedure starts with 2 IV's (one in each arm) and a lot of fluids. You get an anti-nausea med intravenously first (and they continue to check in with you that you have no nausea--I did not have any). Once that is done, they begin the Peptide solution (amino acids)--in my case I think that went on for a couple of hours prior to the lutathera infusion. That infusion generally took about 45 minutes and they are very cautious during that phase. Once that is done, you have about another 2 hours of the peptide solution--they are flushing a lot of fluid thru you to help protect the kidneys, etc. Once all the fluids are done, they measure the amount of radiation you are giving off and once that is low enough (it always was for me at the end of the fluids infusion) they remove the IV's and you are done. The total process never was longer than 6 hours and I think it was closer to 5 a couple of times. There was a nurse assigned to me the whole time I was there and the radiation therapists were with you during the Lutathera infusion and visited before and after. You have your own bathroom and you definitely need to pee with all that fluid! They always brought me snacks and water/drinks after the Lutathera which was nice. You can nap or read during the day and the staff chat with you too. I was really tired after my first treatment, less so with each one after that--and I think that varies for each patient. But I would plan on lots of napping after your first one, just in case. They will give you distancing protocols for the first 3 days after treatment but encouraged me to walk, etc. and I did when not napping! I also found that I was more comfortable eating certain foods rather than others the first couple of days, but I did not have any nausea--just wasn't very hungry. Everything got easier with each treatment--so stay patient and positive. It was worth it for me and I would do it again. Good luck both!

Hi, my hubs starts his Lutathera on June 21st. It'll be interesting to compare notes. Did they give you the info about how long it'll take and precautions, etc? I was told it would be 6 to 8 hours. In your own room with a bathroom to use hourly (keep the kidneys healthy, big concern with this treatment). And I was told this med comes in from either Italy or NJ and sometimes the patient has to wait for it bc they only send it out so many hours prior to giving it to the patient. They also give nausea meds and amnioacids, I think, again to help pricy the kidneys. Please let us know how you made out and I'll do the same for my hubs.

Hi jlu & sandy: I completed PRRT therapy (lutathera) a little over a year ago at Mayo, Arizona so can respond with what to expect from that perspective. It is a long (about 5-6 hours total) day, but in my case not painful or difficult. The procedure starts with 2 IV's (one in each arm) and a lot of fluids. You get an anti-nausea med intravenously first (and they continue to check in with you that you have no nausea--I did not have any). Once that is done, they begin the Peptide solution (amino acids)--in my case I think that went on for a couple of hours prior to the lutathera infusion. That infusion generally took about 45 minutes and they are very cautious during that phase. Once that is done, you have about another 2 hours of the peptide solution--they are flushing a lot of fluid thru you to help protect the kidneys, etc. Once all the fluids are done, they measure the amount of radiation you are giving off and once that is low enough (it always was for me at the end of the fluids infusion) they remove the IV's and you are done. The total process never was longer than 6 hours and I think it was closer to 5 a couple of times. There was a nurse assigned to me the whole time I was there and the radiation therapists were with you during the Lutathera infusion and visited before and after. You have your own bathroom and you definitely need to pee with all that fluid! They always brought me snacks and water/drinks after the Lutathera which was nice. You can nap or read during the day and the staff chat with you too. I was really tired after my first treatment, less so with each one after that--and I think that varies for each patient. But I would plan on lots of napping after your first one, just in case. They will give you distancing protocols for the first 3 days after treatment but encouraged me to walk, etc. and I did when not napping! I also found that I was more comfortable eating certain foods rather than others the first couple of days, but I did not have any nausea--just wasn't very hungry. Everything got easier with each treatment--so stay patient and positive. It was worth it for me and I would do it again. Good luck both!

Well that is more foreboding. We haven't received written instructions. It appears it's less time than we were told. However, she did say 6 to 8 hours with a variance. So I'm guessing it's their TIME she's referring to.

Here is the details of treatment steps of the day.

I did receive the Lutathera treatment plan, instruction, procedure and post-care sheet during consultation. Actually I will start my treatment on June 7 from 8 AM to 1 PM (6 hours) due to other cancellation, pretty similar to what you described. I have also been prescribed nausea medicine just in case of use at home. Blood work should be done before each treatment. I will share my experience of the treatment.

Hi, my hubs starts his Lutathera on June 21st. It'll be interesting to compare notes. Did they give you the info about how long it'll take and precautions, etc? I was told it would be 6 to 8 hours. In your own room with a bathroom to use hourly (keep the kidneys healthy, big concern with this treatment). And I was told this med comes in from either Italy or NJ and sometimes the patient has to wait for it bc they only send it out so many hours prior to giving it to the patient. They also give nausea meds and amnioacids, I think, again to help pricy the kidneys. Please let us know how you made out and I'll do the same for my hubs.