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30 year old with Axonal neuropathy

Posted by sandy47 @sandy47, 9 hours ago

30 year old grandaughter diagnosed with axonal neuropathy has been in nursing home since Sept 2024 due to requiring total care and im unable to care for her. It has been a long scary time. She had no use of her hands arms and on down. She has gained the use of her hands and can now feed herself. We cannot afford 24/7 care and quite frankly dont know that we can trust leople to show up for their shift. There does not seem to be any help of any kind in Illinois. Suggestions???

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Mentor
John, Volunteer Mentor | @johnbishop | 8 hours ago

Hello @sandy47, So sorry to hear about your granddaughters diagnosis requiring total care. I know that has to be difficult for you also. Have you checked with the Illinois Department of Human Services about their Home Services Program? - https://www.dhs.state.il.us/page.aspx?item=29738

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