3 yrs with multiple symptoms after COVID 19 in 2022 now Ankylosing Sp

Posted by Distressed LC Hauler @armalone, May 27 11:51am

A couple months after being vaccinated for Covid, I was diagnosed with fibromyalgia with my hands and feet burning. After having Covid January 2022, it was like the burning pain went through my entire body. I started having stabbing pain in my legs. My tailbone felt like I just fell on it hard and it’s been like that for three years. I get pain in my hips associated with the tailbone and lose all feeling in my legs. now it’s hard to stand on my feet for long. I never know when my legs are just gonna go numb and I’m gonna fall. It’s very embarrassing in public. I’ve lost my balance and fell out of the shower hitting my head on the toilet. It’s like a lightning bolt going up through my feet to my hands when I’m flared up, which is most of the time now. I get tremors in my hands and legs. I don’t trust myself to hold or carry anything that can break. I drop stuff all the time sometimes without even knowing.I’ve had three or four droops in my face that went away the following day. Silent seizures, where I just stare off until somebody snaps me out of it. I’m not sure how often I do this. I only know when someone is there to tell me that I was in my own world. My memory is terrible. I don’t know if something happened yesterday or last week. I’ll take a bath thinking I’ve been in there for a short time and it’s been up to three hours. I don’t have much of a sense of time anymore. I’ve had blackouts when I don’t remember anything. It’s kinda like my mind goes to a place where I’m watching somebody else acting out as me. I can be reading and look at words and not know what they are but not be able to say it. Ill go to write my name and can’t remember what to write. I’ve dazed off at stop signs with people honking, and I’m just staring off. I’ve ran lights in heavy traffic like nobody’s there but me. So I do not drive much at all. I will not drive on the highway because I have panic attacks like the traffic is merging in on me. I’ve never had a problem driving on the highway before now. I’ve seen many doctors over the last three years and I’ve been to Cleveland clinic and Mayfield spine clinic. I was diagnosed with fibromyalgia and long Covid at Cleveland clinic and at Mayfield they did a nerve abrasion on my lower back which did nothing to help the numbness in my tear bone, hips, and legs. I had been at my job for 25 years. I was put on disability through insurance I had at work a little over a year ago. My family and my friends didn’t believe all my symptoms and they all left me alone with all this going on with me scared to death. I moved to another state with a friend. I started all over with the doctors. I did just get a diagnose with testing positive for the HLA B27 genetic gene andAnkylosing Spondylitis. After reading about this, it’s all my symptoms. I don’t know why nobody found this in three years. The last year everything getting worse along with all the already listed symptoms, my vision now gets blurry and I’ve got dry eye syndrome. I get heart palpitations, chest pains. My anxiety is through the roof. All the doctors just wanna keep going back to the anxiety. And yes, I know anxiety plays a big part but anybody deal with all this would deal with extreme anxiety with getting no answers and filling your body, getting weaker and weaker and more and more pain than no answers. Has anybody else experienced all this with Covid? I wonder if Covid was the beginning of the worsening of my spine. Before hand I did have an achy spine and some pains in my tailbone because I was a forklift driver for years. But not to the extreme after Covid.

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