1. < Esophageal Cancer

3-year survival rate of those who have had esophagectomies at Mayo

Posted by protonbeam @protonbeam, Feb 1, 2023

My wife has cancer of esophagus. For past 3 years IU Med Center has been lasered out cancer; however, Barrett's high-grade dysplasia keeps coming back. Trying to decide whether or not to switch to Mayo. I hate to seem morbid, but does anyone know what the 3-year mortality rate is for Mayo? I have heard a lot of good about Mayo

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doglover888 | @doglover888 | Apr 16, 2023
In reply to @gardenlady1116 "You are asking a really great question. It's a question you can ask of any of..." + (show)
@gardenlady1116

You are asking a really great question. It's a question you can ask of any of the major cancer centers and see what kind of answers you come up with. Second opinions are really important for cancer patients. Sometimes the treatment you are getting might be just what is always being done. Being proactive and doing your research is really great and I wish you well with your quest for answers to difficult questions.

Jump to this post

My surgeon told me a month ago during my checkup that I have a 15% chance of cancer returning. He said that is a REALLY good percentage. Maybe your doctor can tell you too. Just a suggestion. Hang in there and stay positive!

REPLY
gardenlady1116 | @gardenlady1116 | Apr 15, 2023
In reply to @protonbeam "Thank you. Any statistics you can share,?" + (show)
@protonbeam

Thank you. Any statistics you can share,?

Jump to this post

You are asking a really great question. It's a question you can ask of any of the major cancer centers and see what kind of answers you come up with. Second opinions are really important for cancer patients. Sometimes the treatment you are getting might be just what is always being done. Being proactive and doing your research is really great and I wish you well with your quest for answers to difficult questions.

REPLY
1 reply
Lori57216 | @lori57216 | Feb 14, 2023
In reply to @davidr1 "My wife had her esophagus removed in December 2017 and has been doing great. The use..." + (show)
@davidr1

My wife had her esophagus removed in December 2017 and has been doing great. The use and care of the feeding tube was quite easy and nothing to fear. They will teach you. We had additional complications because of her diabetes. She too had been having treatment for the Barrett's esophagus for several years. Fortunately the Barrett's treatment was being done at Mayo in Rochester. As soon as the cancerous neoplasm was discovered we were referred to a surgeon and the surgery was performed 3 weeks later. The key to esophageal cancer is early treatment. I don't believe there is a place that does more. If not daily, at least several esophagectomies are performed each week. The 3 year survival statistic is a mute point since whatever it is is better than anywhere else. Because of the dedicated teams at Mayo my wife has been able to enjoy 5 additional grandkids and she is back to taking care ❤ of me like she has done the last 50 years. Bottom line: get your butt to Mayo.

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I had mine removed at Mayo / Rochester also. April 2020. I am coming up on my 3rd year of
"survival" and doing pretty great I must say. Will go back to my Mayo team the first part of March to have a diaphram hernia removed. I truly believe they are the best of the best!!!!

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scarlet/tanager | @scarlettanager | Feb 13, 2023
In reply to @advocatepaul "2023 will be my 12th year after my esophagectomy. In 2010 the Proton Beam unit at..." + (show)
@advocatepaul

2023 will be my 12th year after my esophagectomy. In 2010 the Proton Beam unit at Mayo in Phoenix was just coming out of the ground. My radiation was done the old way, which is still the most popular method all over the US. In 2012 the Mayo team in Phoenix saved my life even though the Proton Beam unit was not yet operational. This week is my annual testing and procedure at Mayo and I feel great. There is a perception by most humans that a generic name of something means that all available with that name can do the same thing. A Hummer and a Smart car will both get you from point A to point B but the Hummer can easily pull a 5000 lb. trailer and the Smart car cannot. Mayo is absolutely the best-run, most highly skilled, most caring, most capable medical/healthcare organization on our planet!

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Hello,

It’s great to hear you’re doing well. When I read the prognosis of this disease, it can cause great distress. You provided a great success story and hope for others. I have been to Mayo in Rodchester. Hear great things from people that were treated there. I’m Canadian and will keep this option in mind for when I need treatment if things don’t go well here.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 4, 2023
In reply to @protonbeam "Does U of Florida have Proton beam. My wife insists on going to Florida campus of..." + (show)
@protonbeam

Does U of Florida have Proton beam. My wife insists on going to Florida campus of Mayo

Jump to this post

Yes, University of Florida offers proton beam therapy. Mayo Clinic works with U of Florida for Mayo requiring proton beam therapy.

REPLY
protonbeam | @protonbeam | Feb 4, 2023
In reply to @colleenyoung "Mayo Clinic's proton beam facility at the Jacksonville campus is currently under construction. If proton beam..." + (show)
@colleenyoung

Mayo Clinic's proton beam facility at the Jacksonville campus is currently under construction.

If proton beam therapy is recommended by Mayo experts, then the team can work with University of Florida department or Florida patients can choose to have proton beam therapy at the Rochester, Minnesota campus.

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Does U of Florida have Proton beam. My wife insists on going to Florida campus of Mayo

REPLY
1 reply
protonbeam | @protonbeam | Feb 4, 2023

So does U of Florida have the Proton Beam? My wife insists on going to Florida campus of Mayo

REPLY
Moderator
Colleen Young, Connect Director | @colleenyoung | Feb 3, 2023
In reply to @protonbeam "Florida . Do they have Proton Beam Therapy?" + (show)
@protonbeam

Florida . Do they have Proton Beam Therapy?

Jump to this post

Mayo Clinic's proton beam facility at the Jacksonville campus is currently under construction.

If proton beam therapy is recommended by Mayo experts, then the team can work with University of Florida department or Florida patients can choose to have proton beam therapy at the Rochester, Minnesota campus.

REPLY
1 reply
davidr1 | @davidr1 | Feb 3, 2023

My wife had her esophagus removed in December 2017 and has been doing great. The use and care of the feeding tube was quite easy and nothing to fear. They will teach you. We had additional complications because of her diabetes. She too had been having treatment for the Barrett's esophagus for several years. Fortunately the Barrett's treatment was being done at Mayo in Rochester. As soon as the cancerous neoplasm was discovered we were referred to a surgeon and the surgery was performed 3 weeks later. The key to esophageal cancer is early treatment. I don't believe there is a place that does more. If not daily, at least several esophagectomies are performed each week. The 3 year survival statistic is a mute point since whatever it is is better than anywhere else. Because of the dedicated teams at Mayo my wife has been able to enjoy 5 additional grandkids and she is back to taking care ❤ of me like she has done the last 50 years. Bottom line: get your butt to Mayo.

REPLY
1 reply
protonbeam | @protonbeam | Feb 3, 2023
In reply to @advocatepaul "2023 will be my 12th year after my esophagectomy. In 2010 the Proton Beam unit at..." + (show)
@advocatepaul

2023 will be my 12th year after my esophagectomy. In 2010 the Proton Beam unit at Mayo in Phoenix was just coming out of the ground. My radiation was done the old way, which is still the most popular method all over the US. In 2012 the Mayo team in Phoenix saved my life even though the Proton Beam unit was not yet operational. This week is my annual testing and procedure at Mayo and I feel great. There is a perception by most humans that a generic name of something means that all available with that name can do the same thing. A Hummer and a Smart car will both get you from point A to point B but the Hummer can easily pull a 5000 lb. trailer and the Smart car cannot. Mayo is absolutely the best-run, most highly skilled, most caring, most capable medical/healthcare organization on our planet!

Jump to this post

Thank you. I am so glad to hear that you are a 12-year survivor of an esophagectomy! It appears that my wife will be going to the Florida location. May God Bless you.

REPLY
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