3-year survival rate of those who have had esophagectomies at Mayo

Posted by protonbeam @protonbeam, Feb 1, 2023

My wife has cancer of esophagus. For past 3 years IU Med Center has been lasered out cancer; however, Barrett's high-grade dysplasia keeps coming back. Trying to decide whether or not to switch to Mayo. I hate to seem morbid, but does anyone know what the 3-year mortality rate is for Mayo? I have heard a lot of good about Mayo

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Profile picture for bkjenkins @bkjenkins

I was diagnosed with stage 3 esophageal cancer in July 2022. I went to Mayo for proton radiation and chemo (I am not a candidate for surgery) I recently had a biopsy and there is no evidence of cancer! Mayo Clinic is the best! They also helped me when I was diagnosed with AML leukemia.

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@bkjenkins
Im so happy to hear this! I CELEBRATE with you! My husband will start proton radiation with chemo on March 9 through April 16 foe stage 4 esophageal cancer. He has had 5 chemo treatments and the tumor has shrunk 80%. He is 74, and we have been married 48 years. Im not ready to give him up yet! Im so happy to hear of your success! Blessings!!

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Yes! Had esophagus removed December 2020. Mayo Arizona assembled great team for surgery, chemo and proton beam radiation.

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Profile picture for caroline92606 @caroline92606

I have made it to nearly 11 years after the esophagectomy. I wasn't treated at Mayo but had a good surgeon on the West Coast. I had chemo and radiation first and was stage three. Life has never been the same, but I feel fortunate to be alive.

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Welcome, @caroline92606. You message gives hope. Thank you. I look forward to seeing more of your posts to help people who are newly diagnosed.

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Caroline
I had chemo and radiatio over a year ago at Moffitt in Tampa Florida, and scans are clear now. I hope I can make it 11 years. Congratulations!
Don

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I have made it to nearly 11 years after the esophagectomy. I wasn't treated at Mayo but had a good surgeon on the West Coast. I had chemo and radiation first and was stage three. Life has never been the same, but I feel fortunate to be alive.

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I am going on 4 years post surgery and recovered well. Stats can be misleading. My father had his first in 1965 and lived until age 78. I was diagnosed in June of 2020 and had chemo, proton beam radiation, followed by esophagectomy on 9/1/20. The most difficult part was getting used to was eating properly to avoid dumping. Glad to say that only happens rarely now and it is always my own fault for eating too much or eating something I shouldn’t,

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Profile picture for Colleen Young, Connect Director @colleenyoung

@jcrs, Mayo Clinic's proton beam facility at the Jacksonville campus is currently under construction.

If proton beam therapy is recommended by Mayo experts for your husband's care, then the team can work with University of Florida department or Florida patients can choose to have proton beam therapy at the Rochester, Minnesota campus.

Dr. Starr is amazing.

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Thank you for your comment. I'm glad to hear it. We can't wait to have his first appointment with the Dr.
Helaine

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Profile picture for jcrs @jcrs

I would like to know too, if FL has Proton Bean Therapy. My husband is switching to Mayo Jax this Fev 2nd, with Dr. Starr. We can't wait for the appointment, since we don't feel comfortable with the treatment he is receiving at Kaiser Permanent.
For us it means that we have to move from West coast to East coast, but he will be treated with cutting edge technology.

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@jcrs, Mayo Clinic's proton beam facility at the Jacksonville campus is currently under construction.

If proton beam therapy is recommended by Mayo experts for your husband's care, then the team can work with University of Florida department or Florida patients can choose to have proton beam therapy at the Rochester, Minnesota campus.

Dr. Starr is amazing.

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Thank you. I have had both radiation and chemo pre surgery. I am currently about half way thru my immunotherapy. I have had several side effects from the immunotherapy, (Opdivo) such as skin rashes, itching, sore joints and arthritis flair ups. But all in all I count my blessings, I am a 2 time cancer survivor. It was bladder about 3 years ago and now esophagus. I wish you all the absolute best. Stay strong keep fighting!! 😃

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Profile picture for sboswell @sboswell

Go to Mayo, they are the best and most knowledgeable. Good luck to you both!

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Welcome @sboswell. What treatments did you have for esophageal cancer? How are you doing?

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