Connect
24 Hour Urin Test indicates pheochromocytoma. CT Scan Scheduled. Im
Just wondering if there was anyone out there who could help ease my mind and help me think that I'm going to be ok. My urine test showed Metane @ 1821
Metanephr @ 286
Normetane @ 1535
Just very scared.
Like
Helpful
HugInterested in more discussions like this? Go to the Diabetes & Endocrine System Support Group.
Connect
Hi @cstevens272006. I'm sorry to hear that you are going through this. I am not too familiar with Pheochromocytomas but I can tell you I was diagnosed with multiple pancreatic neuroendocrine tumors a little over 6 years ago. They were found incidentally with a CT looking for a kidney stone. I was floored to find out and was sure my days were numbered. I ended up having a total pancreatectomy and have learned to adjust my lifestyle (diabetes and diet management) and still live a pretty active and normal life.
I think it's natural to be scared and I was too. I spent a lot of time educating myself on my situation and that allowed me to manage my situation much more effectively. Mayo has a good write up on the condition here https://www.mayoclinic.org/diseases-conditions/pheochromocytoma/diagnosis-treatment/drc-20355372.
Sending best wishes and prayers your way.
- Matt