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14 CM PNET w/ one year post resection. When will I see reoccurrence?
I had a very large PNET removed (14 CM) along with my spleen, adrenal gland and 21+ lymph nodes (4 were malignant the other ones were so matted they can't tell how many more were/may have been) Stage 3 Ki-67 3%. One year post resection and so far NED. What is the average length of time for recurrence?
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Hi! I had a 1.8cm pnet, with 6 of 8 lymph nodes positive at the time of surgery. My KI is 6.7 I am currently 3 years post diagnosis and 2 1/2 years post surgery. Aside from surgery and continuing 6 month MRI surveillance,(I have had no other treatments )I too, ponder your question on “when”.
My next MRI is this Friday, and I get so much scan anxiety… not for the procedure, but the results. I know that whatever may or may not be happening inside my body is already potentially occurring and that finding out as soon as possible is the very best thing. …But I still find myself so, so anxious….It is a nerve wrecking experience for certain. I find I tend to live between the scans, I am able to breathe easier for about 5 months before I start thinking about the next scan and then building anxiety until the scan and results.
Having had 6 of 8 positive lymph nodes, I am a realist, and know it is not a matter of “if” but “ when”…..but as of today, I am 2 1/2 years post surgery and until I am told differently, I am still disease free. Best of luck to you on your journey and getting your answer to your question. But I hope your”when” is a long long time from now🙃
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1 ReactionYeah my surgical oncologist literally told me it’s a matter of when it comes back not if! But he says we will just keep cutting it out! I trust him more than my oncologist because he shoots me pretty straight when it comes to worst case scenario and the realities of it all.