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Hi,
I have OLP also! It's painful for me also! In addition to the lesions, the tissue in my mouth feels like it was sanded with coarse sandpaper!!!!
I'm not familiar with cyclosporine treatment for OLP. I use a dexamethasone mouth rinse when my mouth gets really bad. It can only be used for 10 days at a time! It helps!! I also have the Lidocaine rinse which helps for about 7 minutes!! LoL
I haven't taken oral Dexamethasone (steroid) yet. I won't take them unless I absolutely have to. The side effects can be very challenging.
I also have LP on my skin and I have Esophageal Lichen Planus which is "extremely" rare. ELP is so rare it's impossible to find a doctor that has ever had a patient with it.
I wish the best! I hope the rheumatologist will be able to help you!
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The rheumatologist appointment isn't until March, but will let everyone know its outcome. If I know I'm going out to a meal, I swish with Magic Mouthwash and take an ibuprofen. It helps for awhile. I look perfectly normal(!), no one would know what a mess my mouth is.