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@lizpower

I have heard reference to long covid recovery protocols from the FLCCC Alliance. Does the Mayo Clinic use these protocols and recommend them?

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Replies to "I have heard reference to long covid recovery protocols from the FLCCC Alliance. Does the Mayo..."

Good question, @lizpower. I moved your question to this discussion so you can connect with others looking for a protocol that works for them. There remains much to be studied regarding effective treatment of long COVID.

Members like @sdykema @ldropps @arichards3 @baker00l @joanma @mitfit @seidholz @19465 who have been to Mayo Clinic's Post-COVID program can tell you more about their experiences.

I think the overarching messages are:
a) treatment depends on your symptoms and should be tailored for you
b) recovery takes time, can involve set backs and requires patience.
c) there is no silver bullet

Here's some information about Mayo Clinic's approach from Mayo Clinic:
- Post-COVID Conditions - Mayo Clinic Proceedings 2023
Michael R. Mueller, MD, Ravindra Ganesh, MBBS, MD, Ryan T. Hurt, MD, PhD, Thomas J. Beckman, MD
DOI:https://doi.org/10.1016/j.mayocp.2023.04.007

Key takeaway
"Because presenting symptoms are often vague, the approach to evaluation should be comprehensive with consideration of other diseases that could masquerade as post-COVID conditioni (PCC). Treatments of PCC are little researched, are largely expert based, and are likely to evolve as more evidence emerges. Current therapies, which are symptom targeted, include medications and nonpharmacologic therapies such as optimizing fluid intake, compression garments, progressive activity, meditation, biofeedback, cognitive rehabilitation, and addressing concomitant mood disorders. Many patients will enjoy significant improvements in their quality of life with multimodal treatments and longitudinal care."

- Interview with Mayo Clinic Long COVID Expert Dr. Greg Vanichkachorn (2023)
https://www.youtube.com/watch?v=JIlW-hV3wco

Expert blog post by Dr. Ganesh, Mayo Clinic
- Post-COVID Syndrome and Medications https://connect.mayoclinic.org/blog/post-covid-recovery/newsfeed-post/post-covid-syndrome-and-medications/

Liz, if you would like to request an appointment at Mayo Clinic you can get started here: http://mayocl.in/1mtmR63

What are you main symptoms? Have you been to a long COVID clinic?