← Return to Chlofazamine Clinical Trial Experience and Watch & Wait

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@wabashacabin

Good morning, I have been asked to participate in this trial at USF. My concerns are the skin discoloration, eye issues, macular degeneration, which I have had for over 10 years. I have had 3 sputum cultures that were positive. We have been watching and waiting for 2.5 years as I am asymptomatic. I am 76 years old and would like input on anyone else who has experience with the Clofazamine trial. Thank you for your input. I do Albuterol and 7% saline daily which I started a year ago. Only coughing up sputum when I do my nebulizing, and not great amounts at all.
Your information is greatly appreciated.

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Replies to "Good morning, I have been asked to participate in this trial at USF. My concerns are..."

I'm on Clofazimine along with the other 3 antibiotics for MAC. I have a slightly tan completion naturally and the Clofazimine just added a little more color as if I had a suntan.

I have no experience with this drug except for my reading about it. Rifampin which it would replace is a drug that is not necessary for MAC treatment as much anymore. My question to you would be why not try Arikayce? It does work against MAC. Also, if you have no symptoms why are you considering this medication ? Irene5