OHHH NOOO! I'm SO sorry you are experiencing this too! You are literally the only other person I've heard from in all my searching that has said they've had the same experience as me. I sincerely hope it doesn't alter your system the way it did mine. I've had two more hives episodes this year already...one to a trigger unknown Jan 3rd and again today from having two sips of Whiskey, which has never bothered me before. And I had Covid one time and took Paxlovid one time in May of 2021, and I'm still experiencing the effects of what it did to my system. The hives on my face and neck are brutal.

I haven't been able to find anything, nor any doctor to help. I have found a dermatologist who may be able to do extended patch testing on me to maybe help find out what might be triggering me, but as far as an MCAS dr that has knowledge of paxlovid/covid/mcas/autoimmune/etc, that also takes insurance and is willing to work with the patient...seems like a fairytale. and whatever covid/paxlovid has done to me has altered the way prostaglandins work in my body so most MCAS docs are going to look at histamine and then think everything is fine. I had to beg my PCP to test my PGE2 levels...took two months to get the results and found out they are WAY low...then the PCP has no idea what that means, so now I gotta find someone that does understand that...but anyone that does probably doesn't take my insurance.

I work for a functional medicine dr and the only thing we've found that helps stop episodes (for me), if taken immediately, is an OxBile supplement. And since MCAS does have a lot to do with the gut and ox bile works with the gut, this makes sense. It stopped todays episode in its tracks. The itching stopped within a couple hours. The rash will probably take a couple days to go away though.

I seriously hope you don't have to deal with any of this and that you heal quickly. Please keep in touch.