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Post CAR T cell -- rash

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Oct 23 7:51pm | Replies (17)
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@karenkkm

Hello, Karen here & I am 1 year out of carT treatment & am so very grateful for it! I have had periodic itching and found all your comments very helpful. I have started using CeraVe itch relief per my GPs suggestion and am happy with it. This morning I woke up with two dime size welts above my knee & the area was itching. They were noticeably raised. I put on the CeraVe and they appear to be better. Has anyone experienced welts (not blisters)
Thanks

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Replies to "Hello, Karen here & I am 1 year out of carT treatment & am so very..."
Colleen Young, Connect Director | @colleenyoung | Jan 21 9:19pm

Hi @karenkkm, I'm certain @grandpabob will join me in welcoming you. Congrats on the successful CAR-T treatment. Are the itching and welts a new symptoms for you? How are the welts today?

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annberkowitz | @annberkowitz | Jan 22 8:37am

Hi--
I'm one year out from a successful CAR-T. A few months ago I had a rash on the back of my neck. My dermatologist said it was shingles. Not sure it was, but could be. Below my scapular on right side and on head and it marched all along the back of my neck. Itched like crazy. What has helped me the most is good ole calamine lotion. I still apply it twice daily to my neck. My oncologist said i was too far out for skin issues., BUT if the dermatologist biopsied it to send some to them so they could look at it too. I'm not really sure they any of the know what it is. So many odd maladies but thankfully nothing serious.

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Bob, Alumni Mentor | @grandpabob | Jan 24 11:10am

Hello @karenkkm, Welcome to Mayo Clinic Connect. I agree with you that CarT is something to be grateful for.

I would have to say that I have not had any welts however have had many different kinds of rashes. In all the rashes I had I treated them with standard over the counter lotions which did help a lot. I am now five years post treatment and can say that the rashes have dissipated to a great degree. At this point I am thinking they are simply a part of life.

Is the CeraVe continuing to give you relief?

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kirkwilliams2049 | @kirkwilliams2049 | Oct 23 4:39pm

I am glad I found this site. Mid August, I presented with a dime sized welt on my thigh that I treated with fluocinonide almost to complete resolution. On September 28, 2024 a hivey looking rash started to appear on my arms and legs. I treated with two 5 day rounds of 50mg prednisone. I finally, reported this to my oncology team who referred me to a dermatologist who biopsied the rash yesterday. He suspects CAR T involvement. Will be very interested to see the results of the biopsy. Btw I received the Prevnar20 pneumococcal vaccine the day before the rash presented. The dermatologist suspects that this may have been a trigger but not a direct cause. I am now being treated with betaderm and UVB light therapy. Very interesting!

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