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Has anyone been diagnosed with GFAP

Autoimmune Diseases | Last Active: Apr 15 7:49pm | Replies (54)

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@yuhongtan

Where did you receive treatment? My father was diagnosed. We live in Orange County, Southern California. I try to find a hospital or doctor nearby that specializes in treating this disease.

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Replies to "Where did you receive treatment? My father was diagnosed. We live in Orange County, Southern California...."

I’m so sorry for your father’s diagnosis of this . It is almost impossible to find a doctor who has ever heard of it! Every doctor we dealt with never did.
We live in the NYC area. My husband was in Mt. Sinai Hospital. The doctor there referred all of his test results to the Mayo Clinic. They were the ones that diagnosed him and recommended what his treatment was. His treatment was a high dose of steroids orally, a immunosuppressant and several supplements that tapered down each month. He did this at home.
So far he able to walk again, but deals with lots of other issues from it.
If you read others that were treated, they had different treatments.
I wish you all the best in this rare and frustrating disease.

Unfortunately, I have no advice to give even though I have the diagnosis myself. I live in Europe, so have received treatment and diagnosis here.

I have had major problems with mobility and balance. I had major inflammations in both the brain and spinal cord. Also had problems with memory, vision problems, weakness and tremors in the arms and legs. After treatment (see previous post above) and physiotherapy, I have almost regained my normal functions. But I still suffering from fatigue though and continuing to slowly build up my physique.

I really hope you find a doctor who can help your father and that he receives treatment.