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Does anybody on here have crohns disease?

Autoimmune Diseases | Last Active: Jan 20 5:11pm | Replies (24)
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@sharleneh

Thanks so much. I have been prescribed Mazalazine and been on three pills a day for two years. So are you saying you find Naltrexone better than Mazalazine? I don't feel it ever helped me.
I'm quite worried right now that my gastro wants to put me on a Biologic Entyvio before I am weaned off the Steroid Entocourt. I was on Voltaren for many years and did not have any side effects. I only came off it b/c the docs thought is caused my Crohns but since I didn't get better going off of it they now say Voltaren didn't cause it.
I was on a Biologic Remicade many years ago that I became allergic to. I get that they are not all the same but this new one has a side effect of your hair falling out. Three of the four people I read about being on it three had their hail fall out in handfuls and the one had no side effects and is in Remission.
Am I wrong in feeling a Biologic would be my last resort right now? So appreciate your feedback suetex.

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suetex | @suetex | Jan 20 10:53am

I stayed on my Azsulfadine and added LDN. Just one capsul a day at bedtime so hardly noticed. Where it helped me the most it seemed was my small intesine which was full of small ulcers (looked like blisters) that Entacort barely help.. It took maybe 6-8 weeks to completely heal and I tapered off entacort. I stayed on the azsulfadine until my rheummy (in '23)suggested I try going off of it so I did. No symptoms. I was eating very carefully so tried experimenting with some of my favorites that I had been avoiding. Results so far: raw celery with veins removed - yes, carrot and rasin salad- no. Still no ASA or anything but LDN for my gut. Still eliminate high fiber foods or stay near a bathroom. No real pain, just goes straight through me in a short time.
LDN is worth reading about and finding a doc who is familiar with it. I had to bully my current rheummy to perscribe it but the first two rheummies were fine with it. Exceptance varies in the medical community.
I have had no experience with biologics of any sort so can't speak to that. I know diclofenic (Voltaren) is an Nsaid that is very hard on your gut. It would give you problems eventually no matter what. Best wishes.

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