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Dosage Adjustments On Tymlos Pen
Osteoporosis & Bone Health | Last Active: Feb 16 6:48pm | Replies (117)Comment receiving replies
My traumatic fractures were 2006 @jmla. Thank you for your kind words.
My osteoporotic fractures were spring 2021. I did Femara, a cancer med, for 5 years that affected my bone density significantly.
Compression fractures in the spine can stabilize but they never really "heal." It is important for people to know that. I cannot lift much and have to be very careful how I move.
These fractures cause pain and disability, which is why I come on here to say that Tymlos took my spine from -3.7 to -2.5, severe to borderline, in 18 months.
I did up to 7/8 of the dose, and had never been on any other meds, which might have helped (I could not tolerate others and docs wanted to avoid Reclast at the time I did cancer treatment).
Replies to "My traumatic fractures were 2006 @jmla. Thank you for your kind words. My osteoporotic fractures were..."
My osteoporotic fracture tibia/malleolus was followed by a fractured patella both in March of 2023 and both requiring surgery. I started Tymlos in June. Waiting for results of my bone markers. Initially I started at 8 clicks and side effects bad. So dropped down to 6 for a month then went up to 7 for another month. Now on 8 with minimal side effects. Will repeat Dexa scan in June.
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@windyshores Thanks for that info about compression fractures. I didn’t know that. I’m sorry to hear that your fractures came from a cancer drug. I wish these medicines we take didn’t cause other problems.
My current bone issues are inherited. I’ve tried to remain active throughout life, but there was no escaping it for me. As I said, I’m up to 60 mcg and will probably stay here for another month before trying 70. I’m hoping this drug takes me to the borderline, or better, and reclast (or something else) can keep me there for a while. I have no doubt my bones will need constant attention.