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Want to connect with people who have Coronary Microvascular Disease (MVD)
Heart & Blood Health | Last Active: Jun 9, 2023 | Replies (13)Comment receiving replies
I have had chest pain off and on for years. My cardiologist says it is not heart related but doesn't seem to know about MVD microvascular heart disease in women. That is what I suspect as my worst episode was after a screaming fight with husband and at least once awoke me from a nap. Doctor wants to believe it is from my possible pancreas problems, my GERD, or my IBS. My GERD seems totally controlled unless I skip my Omeprozole, I am having my pancreas issues checked out at Mayo and I don't think it is due to IBS as it occurs when I don't have any abdominal pain. Anyone have suggestions for tests I should ask Mayo to run? Anyone with MVD and GERD, pancreas or IBS issues? I do have Afib diagnosed by 2 week monitor. My brother also has it and cardiomyopathy. I have Type II Diabetes, High BP, High cholesterol, obesity and high trigylcerides. I am chronically low on magnesium. Have floaty, foul smelling stools and chronic diarhhea with low lipase levels. I am diagnosed with chronic pancreatitis which results in low levels of things like magnesium and lipase which most GI and ER docs don't seem to know. I also have fatty liver disease that may have progressed to nonalcoholic cirrhosis Then finally this month I developed such extreme fatigue that I was sleeping 18-22 hrs a day and became too tired to chew food. I asked my primary care doc to check me for Epstein Barr which was reactivated. Now I am also wondering if I have CFS/Fibro. Yikes! Moderators or members any tests you can suggest or people who are good sources of info on MVD, women's heart issues, chronic pancreatitis, nonalcoholic cirrhosis, or Epstein Barr and CFS/Fibro. I need all the support I can get. I work hard at being a well educated, persistant advocate for my health issues. Thanks for responding, following or friending me.
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Hello aesmayo01. Thank you for sharing your story. I have had many tests recently to find the cause of my fatigue, shortness, of breath and exercise intolerance. My doctor ordered a Cardiac Stress MRI to check for MVD. It did not reveal MVD. I also had a bicycle (exercse) echocardiagram. The Echo portion was normal but the EKG portion showed changes in the ST waves and very high blood pressure during peak exercise. I was told this could indicate a coronary blockage or MVD. A coronary angiogram was done to rule out major coronary blockages. I was prescribed a calcium channel blocker to treat the exercise induced hypertension. The doctor said it will also treat any pain I have from microvascular disease in the event that the tests missed it. I am reluctant to take the calcium channel blocker because my blood pressure is normal at rest. I have fluid retention in my abdomen and legs. The doctors are telling me that it is from the hypertension. I know many people with hypertension but they do not have swelling in their legs and abdomen. I appreciate your confusion and sympathize with your situation. When a patient has a complicated clinical picture some doctors want to hang their hat so to speak on something obvious even though the patient feels something much more serious is going on. This may be the reason for your doctor's lack of consideration of heart issues and blaming your symptoms on your digestive issues. Although, digestive issues can most certainly cause chest pain, it is quite telling that your chest pain came after a bout of stress. Keep searching for an answer.......I wish you the best and hope that others can share more about MVD .....especially how they were diagnosed and what specific symptoms they were experiencing. I plan to keep searching for an answer to my symptoms as well and I'll share whatever I can that may be helpful.