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Does anybody on here have crohns disease?

Autoimmune Diseases | Last Active: Jan 20 5:11pm | Replies (24)
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@suetex

You will need a dr. to write a script for you and a compounding pharmacy to make it up. It is an off label use at the levels we take it. Start with your primary doctor first and read up on it before hand. There are several good websites devoted to it. I take 2 mg a day , many people take more. Your gastroenterologist may be more adventuresome than mine. Mine agrees that it might help but won't persribe it until it is "protocol". So I rely on my rheumatologist. Good luck!

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Replies to "You will need a dr. to write a script for you and a compounding pharmacy to..."
sharleneh | @sharleneh | Jan 18 7:52pm

Thanks so much. I have been prescribed Mazalazine and been on three pills a day for two years. So are you saying you find Naltrexone better than Mazalazine? I don't feel it ever helped me.
I'm quite worried right now that my gastro wants to put me on a Biologic Entyvio before I am weaned off the Steroid Entocourt. I was on Voltaren for many years and did not have any side effects. I only came off it b/c the docs thought is caused my Crohns but since I didn't get better going off of it they now say Voltaren didn't cause it.
I was on a Biologic Remicade many years ago that I became allergic to. I get that they are not all the same but this new one has a side effect of your hair falling out. Three of the four people I read about being on it three had their hail fall out in handfuls and the one had no side effects and is in Remission.
Am I wrong in feeling a Biologic would be my last resort right now? So appreciate your feedback suetex.

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