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is there such a thing as zero negative Sjogren’s?
Autoimmune Diseases | Last Active: Jan 21 10:31am | Replies (12)Comment receiving replies
I have dry eyes, nose, mouth, skin. I am dizzy and my hearing is distorted with tinnitus and hyperacusis. I have tested negative three times for Sjogrens. Since having Covid, all these issues are much worse. I do not have pain, except for gritty uncomfortable, light sensitive eyes.
I do wonder if I have not yet had the right test.
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I am sorry dloos that you have all these symptoms with as yet, no resolution.
As a few of us have said, a negative Sjögren’s test does not necessarily mean that you do not have SS. It has been found that quite a significant percentage of ‘sufferers’ remain seronegative for some time or forever. These estimates are based on individual studies which range from 15% to something like 48% seronegative. However when these ‘Sjögren suspicious’ patients are clinically examined by a specialist Rheumatologist many can be fairly reliably diagnosed based on symptoms and other parameters.
Did you have a lip biopsy done or blood testing?
If you enjoy reading medical article abstracts there are quite a number of them accessible online which provide information and data on this topic of SS seronegativity.