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@dwolden

Thank you for asking. He is getting vidaza , five days in then three weeks off. He started in Dec. His platelets have dropped to nearly zero (today they were at 3). They are transfusing platelets every time they check blood now.
He is an outpatient. We did spend three days in hospital in Dec a week after first treatment with neutropenic fever.
We are beginning to look for housing in Rochester. That is hard with no firm dates.

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Replies to "Thank you for asking. He is getting vidaza , five days in then three weeks off...."

It’s not unusual to have those big drops in blood counts when in treatment. Particularly scary with those low platelet numbers…no knife juggling for a while! He’s pretty vulnerable to infections too at this point. You’ve already discovered that with his neutropenic fever. I went through that too. Sometimes that just happens with no obvious underlying cause. So extra precautions are needed to avoid exposure to viral, bacterial or fungal infections. I know it’s really disruptive but it’s keeping him safe and on track for a transplant.

The great thing about Rochester is that so much in that city is centered around the Clinic. There’s a lot of housing opportunities and most can be had within a couple week’s notice. So don’t fret about not knowing the dates yet. Generally you have a good month from the time a donor is found to when you have a firm date for transplant. This will all come together. 😉