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Merkel Cell Carcinoma: I'd like to hear from others

Neuroendocrine Tumors (NETs) | Last Active: Oct 20 7:30pm | Replies (133)
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@lynn99

Thanks Roger, for sharing your story. Glad that you had no adverse side effects from the immunotherapy. How do they determine if it is working, do you know? I go in for my radiology set up apt tomorrow. And I have a bolster on my face that will get removed (yay). It’s over the skin graft placed on my nose and face during surgery. It’s pretty uncomfortable. Hopefully your side effects from radiation will fade away now that you are finished. Thanks for your prayers. God is helping me deal with all of this.

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Replies to "Thanks Roger, for sharing your story. Glad that you had no adverse side effects from the..."
rogermcintire | @rogermcintire | Jan 20 2:24pm

Hello Lynn99. I'm hoping you are doing well after your radiology appointment and feeling relief after having the bolster (I had to look up what that was) removed.
I will have immunotherapy for up to a year and I'm not sure what steps will be taken to determine if the treatments are working.
It has been nine days since my final radiation session and I'm seeing some improvements everyday - less soreness in mouth and tongue but I still cannot taste anything. I'm hoping the taste will return soon since I am someone who really likes their grub!
Take care of yourself and hang in there!

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