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Erosive oral lichen planus

Autoimmune Diseases | Last Active: Jan 19 4:18pm | Replies (231)
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@janruth

My doctor just referred me to a rheumatologist. I'm hoping for some help with oral lichen planus. I have sores in my mouth that make it hard to chew. Hurts a lot. Have tried cyclosporine. Still on it but don't notice s difference.

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Replies to "My doctor just referred me to a rheumatologist. I'm hoping for some help with oral lichen..."
sadea0208 | @sadea0208 | Jan 19 9:13am

Hi,
I have OLP also! It's painful for me also! In addition to the lesions, the tissue in my mouth feels like it was sanded with coarse sandpaper!!!!
I'm not familiar with cyclosporine treatment for OLP. I use a dexamethasone mouth rinse when my mouth gets really bad. It can only be used for 10 days at a time! It helps!! I also have the Lidocaine rinse which helps for about 7 minutes!! LoL
I haven't taken oral Dexamethasone (steroid) yet. I won't take them unless I absolutely have to. The side effects can be very challenging.
I also have LP on my skin and I have Esophageal Lichen Planus which is "extremely" rare. ELP is so rare it's impossible to find a doctor that has ever had a patient with it.
I wish the best! I hope the rheumatologist will be able to help you!

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