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is there such a thing as zero negative Sjogren’s?

Autoimmune Diseases | Last Active: Jan 21 10:31am | Replies (12)

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@lsk246

May I ask, what medication’s were you prescribed for your Sjogrens?

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Replies to "May I ask, what medication’s were you prescribed for your Sjogrens?"

I developed several autoimmune diseases from Covid/vaccine (my body created antibodies that turned against me), both antiphospholipid syndrome (clotting disorder) in Fall 2021 and Sjogren's May 2023. My onset of severe symptoms (muscle weakness, debilitating joint pain, brain fog, etc) didn't have me seeking answers until early 2023, but had antibody testing done with a rheumatologist and got the Sjogren's diagnosis. Because I am on blood thinners with my antiphospholipid syndrome (had acute saddlebag PE and DVT in Oct 2021), my only option for meds for Sjogren's was hydroxychloroquine (Plaquenil). I will say, I began taking it in June 2023, and by mid July I saw a majority of my extreme symptoms and pain resolved. I can still get flares, but the meds were a game changer for me. For the first time in over a year I had a sense of normalcy. I also transitioned with the the meds to an anti inflammatory diet, which had great results for me even before I started to reap the benefits of the hydroxychloroquine at 6-12 wks.

Like sarahm73 I was prescribed Plaquenil.

I had a period of time when the Rheumatologist put me on Methotrexate but I concluded that it wasn’t that effective for me so I went back onto Plaquenil, which I still take.

The other meds which really helped me most before I started Plaquenil were, Lyrica (Pregabalin) for the neuropathy, Propranolol for the POTS (postural orthostatic tachycardia syndrome) and Domperidone/Motilium for the paralysed GI tract and gastroparesis. I am still taking all these meds specifically plus a few others for pain and lung issues.