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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jun 18 8:57pm | Replies (402)
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@loribmt

Good morning, @dwolden A fellow Wisconsinite! Bet you’re freezing your tootsies off this morning! It’s nippy out there!
Tell your husband I’m wishing him all the best with his next two rounds of chemo. I know from my experience it’s probably not on his list of fun things to do, but it’s important for his new life ahead. The cleaner we go into transplant the better. Tell him to hang in there…it’s worth the effort!

Again, don’t hesitate if you have any questions! I know this can be daunting to think about relocating for several months but my husband and I look back on the experience with fond memories…challenging times, but fond memories. ☺️

What chemo is your husband taking? Is he an inpatient for the infusions?

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Replies to "Good morning, @dwolden A fellow Wisconsinite! Bet you’re freezing your tootsies off this morning! It’s nippy..."
dwolden | @dwolden | Jan 17 11:58am

Thank you for asking. He is getting vidaza , five days in then three weeks off. He started in Dec. His platelets have dropped to nearly zero (today they were at 3). They are transfusing platelets every time they check blood now.
He is an outpatient. We did spend three days in hospital in Dec a week after first treatment with neutropenic fever.
We are beginning to look for housing in Rochester. That is hard with no firm dates.

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