Hi friends, I’m scheduled for a lumpectomy on 2/1. The surgeon was very optimistic that she could get good margins because of the size and location of area to be removed near nipple. I’m trying to stay upbeat.
You can do it! I did mine last year 2-7-23, am all healed up after surgery and 16 radiation sessions (use aquaphor before and after radiation to stay moist but realize that the grease stains your Bras and t-shirts, so be ready to toss them afterwards). At 64, I asked to have the oncotype Dx test done on the excised tumor. With a score of 17 it showed that chemotherapy would be < 1% effective in preventing recurrence, so I opted out. Please do ask for this test. Good luck. Hugs!
The test she is refering to is above. Just press the link and input your data. DCIS, grade 2, ect. And it will give you your stats. It is free and online. Hope that helps!
Wasn’t sure if understood so I am clarifying.
You can do it! I did mine last year 2-7-23, am all healed up after surgery and 16 radiation sessions (use aquaphor before and after radiation to stay moist but realize that the grease stains your Bras and t-shirts, so be ready to toss them afterwards). At 64, I asked to have the oncotype Dx test done on the excised tumor. With a score of 17 it showed that chemotherapy would be < 1% effective in preventing recurrence, so I opted out. Please do ask for this test. Good luck. Hugs!
@chm64 - Hello! I have been following the replies you are receiving, and I LOVE to see how many people are ready to support you! I hope you feel less anxious, but if you have any additional questions or concerns you'd like to talk about, we are here for you!
I would like to tell you about a test I had. It's ONLY appropriate if you have DCIS. It's a Risk Assessment test that my Radiation Oncologist ordered to evaluate the value of using Radiation Treatments: "DCISionRT" by PreludeDX. https://preludedx.com/patients/
Treatments for DCIS do not include chemo; but may include Radiation Treatments. DCISionRT evaluates a patient’s individual biology along with other risk factors to provide a personalized risk assessment. It predicts the risk of a future DCIS or invasive breast cancer recurrence over the next 10 years with and without Radiation Treatments.
Initially, I told the Radiology Oncologist I did NOT want Radiation Treatments; I was very concerned about the risks associated with receiving radiation.
It was only when I received the results of the DCISionRT test that I realized my future cancer risk WITHOUT the radiation treatments was ELEVATED. With an accuracy of 94%, the results are very reliable. So, yes, based on my results, I decided to do the recommended six weeks of treatment.
You can do it! I did mine last year 2-7-23, am all healed up after surgery and 16 radiation sessions (use aquaphor before and after radiation to stay moist but realize that the grease stains your Bras and t-shirts, so be ready to toss them afterwards). At 64, I asked to have the oncotype Dx test done on the excised tumor. With a score of 17 it showed that chemotherapy would be < 1% effective in preventing recurrence, so I opted out. Please do ask for this test. Good luck. Hugs!
Likewise, my DCISion RT test came back showing that even WITH radiation, my recurrence risk was extremely high. As a result, I opted for a double mastectomy. I am done with the worry.
Likewise, my DCISion RT test came back showing that even WITH radiation, my recurrence risk was extremely high. As a result, I opted for a double mastectomy. I am done with the worry.
I feel great! Within 5 months, I was back to playing tennis and my regular activity, biking, swimming… I decided not to create new breasts at all. The only thing I would do differently is to be even more picky than I already was in choosing my plastic surgeon for aesthetic flat surgery. I saw 10 plastic surgeons who all wanted to create new breasts for me. Some were very rude. The one I chose didn’t show me any pictures of his work. INSIST on finding a plastic surgeon who shows pictures of their results. I had pictures of what I wanted. He said he could create that result. I trusted him. Now I had to find a new plastic surgeon a year later to smooth out the dog ears. The “Not Putting on a Shirt” Facebook page was EXTREMELY helpful to me. I was a 32DDD at Victoria Secret. I always felt my breasts were too big for my body size. Now, I’m a 32A some days and a 32C whenever I want. Never needed radiation or chemo. It’s still tough though. The decision exhausted me!!
I feel great! Within 5 months, I was back to playing tennis and my regular activity, biking, swimming… I decided not to create new breasts at all. The only thing I would do differently is to be even more picky than I already was in choosing my plastic surgeon for aesthetic flat surgery. I saw 10 plastic surgeons who all wanted to create new breasts for me. Some were very rude. The one I chose didn’t show me any pictures of his work. INSIST on finding a plastic surgeon who shows pictures of their results. I had pictures of what I wanted. He said he could create that result. I trusted him. Now I had to find a new plastic surgeon a year later to smooth out the dog ears. The “Not Putting on a Shirt” Facebook page was EXTREMELY helpful to me. I was a 32DDD at Victoria Secret. I always felt my breasts were too big for my body size. Now, I’m a 32A some days and a 32C whenever I want. Never needed radiation or chemo. It’s still tough though. The decision exhausted me!!
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@sue417 - Hello again Sue; I have GREAT news!!!
D.
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2 ReactionsYou can do it! I did mine last year 2-7-23, am all healed up after surgery and 16 radiation sessions (use aquaphor before and after radiation to stay moist but realize that the grease stains your Bras and t-shirts, so be ready to toss them afterwards). At 64, I asked to have the oncotype Dx test done on the excised tumor. With a score of 17 it showed that chemotherapy would be < 1% effective in preventing recurrence, so I opted out. Please do ask for this test. Good luck. Hugs!
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2 ReactionsWhat and where is this test your speaking of that's free on line
Thanks for the info. Will ask about the test.
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3 Reactions@chm64 - Hello! I have been following the replies you are receiving, and I LOVE to see how many people are ready to support you! I hope you feel less anxious, but if you have any additional questions or concerns you'd like to talk about, we are here for you!
I would like to tell you about a test I had. It's ONLY appropriate if you have DCIS. It's a Risk Assessment test that my Radiation Oncologist ordered to evaluate the value of using Radiation Treatments: "DCISionRT" by PreludeDX. https://preludedx.com/patients/
Treatments for DCIS do not include chemo; but may include Radiation Treatments. DCISionRT evaluates a patient’s individual biology along with other risk factors to provide a personalized risk assessment. It predicts the risk of a future DCIS or invasive breast cancer recurrence over the next 10 years with and without Radiation Treatments.
Initially, I told the Radiology Oncologist I did NOT want Radiation Treatments; I was very concerned about the risks associated with receiving radiation.
It was only when I received the results of the DCISionRT test that I realized my future cancer risk WITHOUT the radiation treatments was ELEVATED. With an accuracy of 94%, the results are very reliable. So, yes, based on my results, I decided to do the recommended six weeks of treatment.
Some additional information:
https://pubmed.ncbi.nlm.nih.gov/33821346/
https://www.cancernetwork.com/view/dcisionrt-test-appears-predictive-of-benefit-from-radiation-therapy-dcis-of-the-breast
Hope you find above helpful!
HUGS,
D.
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2 ReactionsLikewise, my DCISion RT test came back showing that even WITH radiation, my recurrence risk was extremely high. As a result, I opted for a double mastectomy. I am done with the worry.
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3 Reactions@toomanyquestions - Thank you for your message! It is very important that other women in similar situations hear from those who have gone through it.
@toomanyquestions - May I ask how you are feeling? Would you change anything?
HUGS!
D.
I feel great! Within 5 months, I was back to playing tennis and my regular activity, biking, swimming… I decided not to create new breasts at all. The only thing I would do differently is to be even more picky than I already was in choosing my plastic surgeon for aesthetic flat surgery. I saw 10 plastic surgeons who all wanted to create new breasts for me. Some were very rude. The one I chose didn’t show me any pictures of his work. INSIST on finding a plastic surgeon who shows pictures of their results. I had pictures of what I wanted. He said he could create that result. I trusted him. Now I had to find a new plastic surgeon a year later to smooth out the dog ears. The “Not Putting on a Shirt” Facebook page was EXTREMELY helpful to me. I was a 32DDD at Victoria Secret. I always felt my breasts were too big for my body size. Now, I’m a 32A some days and a 32C whenever I want. Never needed radiation or chemo. It’s still tough though. The decision exhausted me!!
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3 ReactionsMe
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