Hello @lynn99 and welcome to Mayo Connect. When you say, "It's pretty scary" most of us understand what you mean. Merkel Cell is a rare form of cancer and those of us who have experienced rare cancers understand the frightening aspect of this type of diagnosis.

As you can see, your post has been moved to this discussion group where you will meet others with the same diagnosis. Here you will meet @rogermcintire @penlandtr1 @dreams and @redneckchic501. I would encourage you to read the posts in this discussion group.

One of the first considerations, with any rare cancer diagnosis, is to consult with a specialist. If you do not live near a well-known specialist, often a virtual appointment can be made available. I mention this because not all general oncologists are trained or experienced in treating rare cancers. Mayo Clinic has three locations, where a virtual or in-person appointment might be a possibility for you. Here is a link to appointment information, http://mayocl.in/1mtmR63. If you have a cancer center of excellence nearby you can also contact them for an oncologist in the area who is experienced with Merkel Cell.

Here is some general information from Mayo Clinic's website about Merkel Cell Carcinoma which you might find helpful, https://www.mayoclinic.org/diseases-conditions/merkel-cell-carcinoma/symptoms-causes/syc-20351030

How are you feeling since your surgery, @lynn99?