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@klhilton

Welcome to my world ! I have had this problem for 4 or 5 years now. I had my Roux-en-Y back in 2007 never had a problem up until 2020. I could explain things for hours but the short of it if you are lucky enough to get it controlled with medication that’s fabulous it has not worked for me. I was given the option of reversal, partial pancreectomy, or a feeding tube. My sugar levels have dropped to 27 one time and 28 . My CCG has also read LOW no number.
This is absolutely miserable to live with. I feel for you. PM me if you ever feel like talking on the phone.
🤞😔

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Replies to "Welcome to my world ! I have had this problem for 4 or 5 years now...."

So sorry to hear. I was told that I could reverse my procedure as well. Since my first post I had another ER visit a couple days after Christmas. It happens so fast and I hate it. You are very lucky to be able to have a CGM as my insurance will not let me have one as I am not a diabetic. Which I am very thankful for. I fine that if I drink hot cocoa that is what makes my numbers drop. I would have thought it would bring them up but it does the opposite. The other thing that makes my numbers drop is movie theater popcorn. (I am sure it is the butter) So I have to remember to take a Acarbose tablet before I eat or drink these items and throw in some protein and then I am ok. Now that I think I have that figured out I need to work on getting my weight down again.

I agree this is miserable. I haven't actually seen the 27 or 28, but I got the "Low out of Range" number last night as I ate a half bottle of Glucose tablets trying to keep my sugar up enough to sleep and not deal with the constant alarms. Are you receiving treatment or testing at Mayo? I've had the Roux-en-Y back in 2017 and just started these symptoms as the end of last year.