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DiscussionLiving with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Replies to "Hello, I don't like to talk or complain about my physical issues, but I'm at a..."
Hi @surayabay24,
Thanks for sharing. Your condition sounds worse than mine, and you do have my sympathy, though I know you weren't looking for that.
I can only reply with what I've been doing so far in an attempt to stave off further degeneration and the pain associated with it. I myself, am looking for ANYTHING to do that keeps me off of the harder-core painkilling meds that I'm always worried will turn me into an addict of sorts, along with side effects that just create new problems for myself when the drugs themselves don't give me the respite from pain that claim they are capable of.
I haven't tried acupuncture yet. Have you? No idea if it works or not.
I'll keep checking in here. Always on the hunt for the silver bullet of respite.
Best to you, my friend.
Glenn
I have many similarities to your situation. My main pain relief is a combination of lidocaine and a group of essential oils. I mix this myself and do obtain some relief. This relief is just not from the lidocaine since the area treated becomes warm and you can feel greater blood flow. It has taken me about a year to come up with a combination that works for me. It takes alot of determination and research to find something that works. We are all a bit different metabolically. I would encourage you to do some research on essential oils and work to find something that works for you, Good luck. PS ... I'm in my mid 70's You can find some trials that have worked with essential oils in PUBMED. Which is a peer reviewed journal source.
Goodness! How miserable. I have idiopathic small fiber neuropathy, diagnosed by punch biopsy. It started in my feet and hands, and is creeping up my legs. The only exercise I can do now without being painful, and then increasing my pain, is swimming laps. I learned from an aquatic physical therapist to use a mask and snorkel.
Anyway, I have a question. You mentioned 650 mg up to 4 times a day. What medicine is that?
A few thoughts - if you haven’t tried the seizure medicines for nerve pain (Gabapentin, Lyrica) you could try that. I found success with carbamazepine (Tegretol), which is not commonly chosen for neuropathy. My neurologist added Effexor, and I also use a muscle relaxant (Baclofen) as needed. Anything to block those pain signals.
A good physical therapist is a great thing to have. I’ve been through several, and have been with my current one for over a year. One thing she has done is identify areas that have weakened because of pain and lack of use. She also does dry needling, which works great for me.
If you can find a water therapy clinic, that is quite amazing too.
As you can see, I believe in looking for the “helpers”, and also taking medications to limit my suffering, so I can continue to be helpful too!
I have gotten some pain relief from low dose Naltrexone. Not a cure all but it has helped.