Lupron Treatment Duration: How long were you on it?

Posted by frankstags @frankstags, Jul 7, 2020

I have been diagnosed with Grade 3 prostate cancer with a 4 + 3 Gleason score of 7. This after having 2 PSA scores last year between 4 and 7. The cancer has not spread to the bones. I have received two Lupron injections 3 months apart and will complete 28 radiation treatments in the next couple of days. No surgery. I have tolerated the Lupron shots well with few but manageable side effects. I have an appointment to receive a third Lupron shot next month. My first PSA test after completing radiation won't be scheduled for 3 months. From researching Lupron, it appears that this is used for advanced stages of prostate cancer. From what I was led to believe, I was not advanced. My question: How long and how many Lupron shots might I need to go through? I will have this discussion with my urologist hopefully before proceeding with the next shot. Thanks for any information provided by the group.

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I was on lupron 13 months, off it now for 12 months, gained much weight. I had a client who was on it for 10 years. I am gleason 9, advanced, CR. If I need to go back on it I will inquire if Lupron + Erleada + chemo would be recommended for me. staying alive is not fun nor easy but it is a battle worth fighting. I don’t know if shooting for a cure is in the cards for me

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I'm on orgovyx as opposed to Lupron, but, maintenance seems very doable, gains are tough. It took me quite a bit of time to get back to where I was before I had the operation and then started Lupron. Getting past those numbers was a hell of an effort.
Don't get me wrong, still doing 4 weight sessions a week and running after. Feel great after the workouts, but, don't feel I'm going to gain much in the max weight dept.. (still on the meds though, perhaps it will improve after I stop taking them.). 138 days, but who's counting? ME!

Hang in there!!

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I had Gleson 9 confined to prostate. Had 45 bouts of radiation and now on Hormone therapy for 6 months plus. I am doing fine but want to stop Hormone usgae when it is medically approprate. What is now the required amount of months to be on Hormone therapy.

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@mtv

I had Gleson 9 confined to prostate. Had 45 bouts of radiation and now on Hormone therapy for 6 months plus. I am doing fine but want to stop Hormone usgae when it is medically approprate. What is now the required amount of months to be on Hormone therapy.

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Not sure if you are saying the radiation and ADT as your primary treatment vice BCR..

This may help if so ...https://www.prostatecancer.news/2022/01/optimal-duration-of-adjuvant-adt.html

Kevin

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@kujhawk1978

Not sure if you are saying the radiation and ADT as your primary treatment vice BCR..

This may help if so ...https://www.prostatecancer.news/2022/01/optimal-duration-of-adjuvant-adt.html

Kevin

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Thanks much for the note and data. Had extensive radiation and am now on Hormone therapy. Pet scan showed no cancer beyong the Prostate and the Radiologist still traeted the lymph nodes with radiation just in case. I want to stop at 18 months with Hormone but getting some pressure from urologists to continue furthur.

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I was Gleason 9 and I did 3 years of Lupron (after 6 weeks of radiation). It wasn't fun, but it wasn't horrible, either. Maybe I was lucky.

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@kujhawk1978

Not sure if you are saying the radiation and ADT as your primary treatment vice BCR..

This may help if so ...https://www.prostatecancer.news/2022/01/optimal-duration-of-adjuvant-adt.html

Kevin

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An excellent way to Reply, Kevin: not simply individual opinion, but published material.

Sure hope you're around for questions I might post!

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Is anyone in the group on ABI/Predisone? My husband was diagnosed wht Castrate-resistant Metastic Prostate Cancer one year ago in June and the cancer had come back in his pelvic area. He than had 36 appointments of radiation, followed by Eligard-Lupolide shots every 6 months along with 4 tablets of the ABI-Predisone. Very tired and not much of an appetite or drinking fluids, and now has been off of it for two weeks. I was told to bring him to emergency room for fluids, and after much testing they found out he had blood clots in both lungs. He is now home after 10 days in hospital and does not want to go back on ABI/Predisone.

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@pennyoverhill

Is anyone in the group on ABI/Predisone? My husband was diagnosed wht Castrate-resistant Metastic Prostate Cancer one year ago in June and the cancer had come back in his pelvic area. He than had 36 appointments of radiation, followed by Eligard-Lupolide shots every 6 months along with 4 tablets of the ABI-Predisone. Very tired and not much of an appetite or drinking fluids, and now has been off of it for two weeks. I was told to bring him to emergency room for fluids, and after much testing they found out he had blood clots in both lungs. He is now home after 10 days in hospital and does not want to go back on ABI/Predisone.

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Welcome, @pennyoverhill. Several members have talked about treatment with Abiraterone with prednisone like @mikesuess @ncoic @ringmastr1 @lag @lmacfive @joecontheroad.

How is your husband doing? Did he resume treatment?

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I've been fortunate enough to not be severely affected by the Abiraterone, Prednisone and lupron. It's incredibly important to stay well hydrated in general to help mitigate other side effects.

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