Hello, I have a stage 3 lung NET. I found a lot of good information on Ronny Allen’s Facebook page. You might want to start there. There is a link on his page for an article called “50 Shades of Neuroendocrine” you might want to read. It will take you to his website where you will find lots of valuable information on nets.

My takeaway is eat small, eat smart, get exercise. Live your best life in the time you have.

I have posed questions like yours in the lunch and learn sessions at carcinoid.org. You might want to do the same. From all my research survival is subject to external factors as well as your current state of health.

As the research continues new information is posted at both of these sites on a regular basis.

There are a couple of good books I've read on end of life that you might want to consider. Start with “ A Beginner's Guide To The End” by BJ Miller and Shoshana Berger.

May you have many blessings on this journey.

CEB

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