Monitoring for LCIS and invasive lobular carcinoma

Posted by coffeecat @sgorecki, Jan 14 10:41am

Does anyone have information about monitoring atypical lobular hyperplasia to make sure it doesn't turn into lobular carcinoma in situ and/or invasive lobular carcinoma? Do these conditions show up on a mammogram as calcifications or are they largely invisible?

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windyshores | @windyshores | Jan 14 11:12am

Otto Metzger at Dana Farbar is an expert on lobular and has some videos online. I had mixed ductal and lobular and have similar concerns about whether a recurrence will show up.

Langold | @rarelybees2889 | Jan 15 10:27am

Mayo has a good article on it and about watchful waiting
They recommend a 6 months clinical check plus a MRI or other testing.
I was diagnosed 5 years ago and so far I am OK

coffeecat | @sgorecki | Jan 16 8:55am

Do you have a link for the article?

kstar077 | @kstar077 | Jan 16 11:24am

I had IDC did not show on mammo. Felt it. Had mri showed it. Ultrasound showed it only after I put my finger on it for ultrasound tech to scan. Cancer was like cobwebs and fid not show on mammo. 11mm 12:30 6cm from nipple. Left breast. Margins neg. Lymph nodes neg. 8 percent chance will come back. 92% chance will not. I am not having radiation nor hormone blocker. I have had hysterectomy for endometrial cancer prior to breast cancer. Caught early. Very small. 4% chance come back in vagina. Living my life. 74 thin and working out every day. Hormone blocker could have caused osteoporosis.