1. < Prostate Cancer

Let's get it started: My journey with SBRT (radiation)

Posted by toolbelt @toolbelt, Dec 5, 2023

Start saying your goodbyes cancer.
Testosterone...see you in June.
SBRT starts next week Thursday.
Stay Strong Brothers

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

toolbelt | @toolbelt | Jan 13 7:45am
In reply to @toolbelt "Post SBRT Day 9 - 15 Continuing my reporting on my experience after 5 SBRT treatments..." + (show)
@toolbelt

Post SBRT Day 9 - 15
Continuing my reporting on my experience after 5 SBRT treatments with focal boost, Barrigel spacer, urethral steering to try and avoid GU side effects. I am 68, in good shape, one 4+3, one 3+3, Decipher .84, PSA 7.8, PSMA PET confined to prostate, 6 months Orgovyx. Flomax started with treatment and continues.

9 - Some constipation, watery blood on TP, mucus. Urination fine.

10 - Urgency last night a couple times, once needed to get up and hit the can. Lots of gas…..This morning urgency ok, still a bit constipated (take that with a grain of salt as they used to set the Atomic Clock based on my "regularity". Urination fine.

11 - yesterday was best GI has felt since treatment ended. A little urgency and gas. Hopefully this will continue. Urination fine.

12 - GI continues to improve, less urgency. Still some constipation.

13 - Other than reduced diameter of stool and a little constipation GI is nearly normal. Urination continues at pretreatment levels (with Flomax)

14 - Stools nearly back to normal, urgency gone, urination fine. No fatigue.

15 - Pretty much back to normal

At this point I will only post when and if side effects occur.

As to Orgovyx, currently on day 39 and have yet to experience any side effects.

If anyone has questions please let me know.

Stay Strong Brothers.

Jump to this post

pbmurf......absolutely fabulous to hear you are doing so well. I have my first PSA draw on March 28th. Going to do glucose, triglycerides and cholesterol also as Orgovyx can increase all of those values from normal.

We will keep this going...again great to hear you are 2 weeks ahead of me and doing well.

Stay Strong Brother

REPLY
rkurtzjr | @rkurtzjr | Jan 14 10:28am
In reply to @pbmurf "Hey Toolbelt Glad to hear things are going well for you. Today I hit 30 days..." + (show)
@pbmurf

Hey Toolbelt
Glad to hear things are going well for you. Today I hit 30 days out from SBRT. Did have some constipation too but began a regiment of Metamucil gummies. Seems to do the trick. Otherwise, no side effects from day one. Let's keep this trend going. I'm on month 4 of the Orgovyx. Very mild flash here and there but not really worth mentioning. Looking forward to my follow-up in March. Exercise is the key.

Jump to this post

Congratulations. I start in two weeks

REPLY
1 reply
toolbelt | @toolbelt | Jan 14 10:38am
In reply to @rkurtzjr "Congratulations. I start in two weeks" + (show)
@rkurtzjr

Congratulations. I start in two weeks

Jump to this post

You got this.....We got this. Let me know if you have any questions or concerns.
Stay Strong Brother

REPLY
maverick75 | @maverick75 | Jan 15 7:07am
In reply to @toolbelt "Post SBRT Day 9 - 15 Continuing my reporting on my experience after 5 SBRT treatments..." + (show)
@toolbelt

Post SBRT Day 9 - 15
Continuing my reporting on my experience after 5 SBRT treatments with focal boost, Barrigel spacer, urethral steering to try and avoid GU side effects. I am 68, in good shape, one 4+3, one 3+3, Decipher .84, PSA 7.8, PSMA PET confined to prostate, 6 months Orgovyx. Flomax started with treatment and continues.

9 - Some constipation, watery blood on TP, mucus. Urination fine.

10 - Urgency last night a couple times, once needed to get up and hit the can. Lots of gas…..This morning urgency ok, still a bit constipated (take that with a grain of salt as they used to set the Atomic Clock based on my "regularity". Urination fine.

11 - yesterday was best GI has felt since treatment ended. A little urgency and gas. Hopefully this will continue. Urination fine.

12 - GI continues to improve, less urgency. Still some constipation.

13 - Other than reduced diameter of stool and a little constipation GI is nearly normal. Urination continues at pretreatment levels (with Flomax)

14 - Stools nearly back to normal, urgency gone, urination fine. No fatigue.

15 - Pretty much back to normal

At this point I will only post when and if side effects occur.

As to Orgovyx, currently on day 39 and have yet to experience any side effects.

If anyone has questions please let me know.

Stay Strong Brothers.

Jump to this post

Our cases and treatment are very similar. I'm a bit older at 70. Finished my 6 months of Orgovyx three weeks ago. Hot flashed already gone. I can almost feel my Testosterone coming back. First post treatment labs late Mar. Good luck!

REPLY
2 replies
toolbelt | @toolbelt | Jan 15 7:39am
In reply to @maverick75 "Our cases and treatment are very similar. I'm a bit older at 70. Finished my 6..." + (show)
@maverick75

Our cases and treatment are very similar. I'm a bit older at 70. Finished my 6 months of Orgovyx three weeks ago. Hot flashed already gone. I can almost feel my Testosterone coming back. First post treatment labs late Mar. Good luck!

Jump to this post

Fabulous news, congratulations!!
Stay Strong Brother, and let us know how the labs go.

REPLY
mikewo | @mikewo | Jan 15 8:14pm
In reply to @toolbelt "Post SBRT Day 9 - 15 Continuing my reporting on my experience after 5 SBRT treatments..." + (show)
@toolbelt

Post SBRT Day 9 - 15
Continuing my reporting on my experience after 5 SBRT treatments with focal boost, Barrigel spacer, urethral steering to try and avoid GU side effects. I am 68, in good shape, one 4+3, one 3+3, Decipher .84, PSA 7.8, PSMA PET confined to prostate, 6 months Orgovyx. Flomax started with treatment and continues.

9 - Some constipation, watery blood on TP, mucus. Urination fine.

10 - Urgency last night a couple times, once needed to get up and hit the can. Lots of gas…..This morning urgency ok, still a bit constipated (take that with a grain of salt as they used to set the Atomic Clock based on my "regularity". Urination fine.

11 - yesterday was best GI has felt since treatment ended. A little urgency and gas. Hopefully this will continue. Urination fine.

12 - GI continues to improve, less urgency. Still some constipation.

13 - Other than reduced diameter of stool and a little constipation GI is nearly normal. Urination continues at pretreatment levels (with Flomax)

14 - Stools nearly back to normal, urgency gone, urination fine. No fatigue.

15 - Pretty much back to normal

At this point I will only post when and if side effects occur.

As to Orgovyx, currently on day 39 and have yet to experience any side effects.

If anyone has questions please let me know.

Stay Strong Brothers.

Jump to this post

Reading the comments under Kegel exercises below makes me glad I chose 5 proton radiation treatments over a RP.

REPLY
pbmurf | @pbmurf | Jan 16 7:19am
In reply to @maverick75 "Our cases and treatment are very similar. I'm a bit older at 70. Finished my 6..." + (show)
@maverick75

Our cases and treatment are very similar. I'm a bit older at 70. Finished my 6 months of Orgovyx three weeks ago. Hot flashed already gone. I can almost feel my Testosterone coming back. First post treatment labs late Mar. Good luck!

Jump to this post

That's Great Maverick. Good luck with your labs. Got you beat at 74. I'll let you guys know how mine go on March 6th.

REPLY
1 reply
maverick75 | @maverick75 | Jan 16 7:42am
In reply to @pbmurf "That's Great Maverick. Good luck with your labs. Got you beat at 74. I'll let you..." + (show)
@pbmurf

That's Great Maverick. Good luck with your labs. Got you beat at 74. I'll let you guys know how mine go on March 6th.

Jump to this post

You can win that one any day @pbmurf. Use to be that being the oldest was cool in our younger days. Not so much any more... (-:

REPLY
vshirley | @vshirley | Jan 16 11:20am
In reply to @toolbelt "Post SBRT Day 9 - 15 Continuing my reporting on my experience after 5 SBRT treatments..." + (show)
@toolbelt

Post SBRT Day 9 - 15
Continuing my reporting on my experience after 5 SBRT treatments with focal boost, Barrigel spacer, urethral steering to try and avoid GU side effects. I am 68, in good shape, one 4+3, one 3+3, Decipher .84, PSA 7.8, PSMA PET confined to prostate, 6 months Orgovyx. Flomax started with treatment and continues.

9 - Some constipation, watery blood on TP, mucus. Urination fine.

10 - Urgency last night a couple times, once needed to get up and hit the can. Lots of gas…..This morning urgency ok, still a bit constipated (take that with a grain of salt as they used to set the Atomic Clock based on my "regularity". Urination fine.

11 - yesterday was best GI has felt since treatment ended. A little urgency and gas. Hopefully this will continue. Urination fine.

12 - GI continues to improve, less urgency. Still some constipation.

13 - Other than reduced diameter of stool and a little constipation GI is nearly normal. Urination continues at pretreatment levels (with Flomax)

14 - Stools nearly back to normal, urgency gone, urination fine. No fatigue.

15 - Pretty much back to normal

At this point I will only post when and if side effects occur.

As to Orgovyx, currently on day 39 and have yet to experience any side effects.

If anyone has questions please let me know.

Stay Strong Brothers.

Jump to this post

73 years old finished sbrt 1/5/23 bowel movements smaller,but more regular.On flomax but frequent night urination.No fatigue issues.

REPLY
2 replies
toolbelt | @toolbelt | Jan 16 11:50am
In reply to @vshirley "73 years old finished sbrt 1/5/23 bowel movements smaller,but more regular.On flomax but frequent night urination.No..." + (show)
@vshirley

73 years old finished sbrt 1/5/23 bowel movements smaller,but more regular.On flomax but frequent night urination.No fatigue issues.

Jump to this post

Excellent.
Stay Strong Brother!

REPLY
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