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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 20 hours ago | Replies (7049)

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@downton

Thank you for this group and knowing that what we share really has to be experienced to understand. I checked chronic pain and I do have that but other issues. I have not been able to sit t all for 12 years. I was a nurse very active outside of work. I sat down in a chair one day and my life completely changed. It felt as though I was sitting on broken glass knives. It did feel like i had a broken tail bone and a few months lter in the midst of some of my first imaging,it showed I did have a shattered tailbone.I had this removed and leaving it would have probably have been worthless as it was shattered but so many nerves in that area .I had tarlov cysts removed at the same time (which are cysts in the sacrum and mine were at S3 where the pudendal nerve exits the spine.got no help from this.ince that time the major things I have dealt with is being diagnosed with metastatic crohns(crohns that does not necessarilyeffect the colon but the skin,with all kinds of awful rashes in all kinds of places)effects the eyes,joint. i am now trying my third biologic,dupixent,for atopic dermatits. i sem to be already worse.you know how the story goes. But we must keep hope!

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Replies to "Thank you for this group and knowing that what we share really has to be experienced..."

@downton Welcome to our friendly group with problems and our solutions we share I'm a retired nurse who had 2back fractures one was work related it left me with nerve entrapment that gives me burning painful thighs then another fracture after retirement now osteoporosis .It's difficult for sure I take Tramadol once or twice a day that controls the pain somewhat but not my burnt thighs .They wake me at night so sleep disturbed most times .I'm sorry for what you go through .Get on some pain med that helps from your Dr. I also take CBD by New Age no THC in it .It takes the edge of Exercises help a lot and walking all light Wish you well We are all pain warriors