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Lobular Breast Cancer: Let's share and support each other

Breast Cancer | Last Active: Nov 12 5:54am | Replies (395)

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@rococo325

Hi jkh,

I just discovered this website and have also been on a LCIS journey. I did not have the most
knowledgeable or comprehensive cancer treatment since my diagnosis at 50 in 2012 in Florida.
I have had recurrences and it had never spread into a lymph node. I had multifocal in left breast only but & in 2012 I opted for double mastectomy. I've self-diagnosed 2 tumors in my left armpit since in 2019(oncology practitioners dismissed what I was pointing out finally biopsied it) that surgery w/ some radiation was in 2019. I moved to NC and felt a sm lump in 2022 . I've had radiation again. There was something they saw in 2022 in the pre MRI procedure on a vertebrae, but said it was only a "bone island" , no biopsy was done. I have strained my back with lifting and bending too much and the PA in Oct wanted to do an MRI of my back just in case. The bone island they said is about 20% bigger they thought, biopsied it and it is Lobular BC on left vertebrae. They recommend I take Arimedex. Is that supposed to shrink tumors? What are the physiological outcomes of Arimidex? It states it block the Estrogen Positive cancer cells from growing, but is there any one here or studies showing it shrunk the actual tumor? As for side affects, I don't read anyone saying it causes GI issues. I was told that is the main problem and I think stiffness. Anyone have metastatic BC to Bone?
What Bone Density pills do people recommend? Is is recommended --correct? Thanks!

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Replies to "Hi jkh, I just discovered this website and have also been on a LCIS journey. I..."

Whew! You have been on a journey. I once had a friend tell me you need to be your own advocate. Congratulations on doing that. Right now in your journey I’d suggest you find and discuss all of your options with an oncologist that has all of your history and you will have a connection to. Number one you want to stop this cancer from growing AND you want a quality of life. There are a lot of good options but nothing is perfect. Just so you know…you have been a good help to me…I will be asking for a biopsy in the swollen lymph node that has been in my left armpit for years and the lump in my right breast that didn’t show up on the MRI in November.