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DiscussionThyroid Cancer Group: Introduce yourself and connect with others
Thyroid Cancer | Last Active: Nov 18 5:21pm | Replies (174)Comment receiving replies
Replies to "Hi everyone I have been diagnosed with Papillary Thyroid Carcinoma, and am very scared. What should..."
Live!
I was dx with a rare aggressive thyroid cancer more then 3o years ago , and when it spread the following year I was told my time was limited.
I'm still here and living a valuable and p r educative life. Yes I've had periods over the last years of health challenges but I raised my children and am now enjoying grandchildren!
Kepp it all in perspective. Don't worry too much. .make s point to do things you enjoy with people you b enjoy and live life each moment. Be present in your moments.
Take notes on your questions for your appointments, have someone go with you , to help remember key points of the appointment , or even take notes for you. Wishing you the best!!
Although hearing you have cancer can bring your mind to the worst case scenario, it is important to know that Thyroid cancer is usually contained to the thyroid and very treatable. Also, it is very important to state that FNA is not always accurate for predicting cancer…. False positives can cause a lot of unnecessary stress!
Did you get diagnosed post surgery? If so, they should be able to tell you if the cancer was contained in the thyroid or if it was also outside the thyroid. The treatment seems to vary greatly!!
If you have not had surgery yet, maybe you can ask for Affirma testing on your FNA because it has a high accuracy rate for PREDICTING cancer. Since I am not an advocate of removing organs “just in case it’s cancer,” I think going with the best predictor would be worth it. If you have a large goiter and the Affirma testing shows a low level of concern for cancer, you might qualify for Radio Frequency Ablation (RFA) where they shrink the nodule instead of taking out the thyroid gland.
It is important to mention, removing the thyroid gland will result in the need to take medicines that are not always easy to get regulated on (I am having difficulty with this), so in my opinion, surgery is the last option unless definitely necessary..
If you already had surgery…I read that Papillary cancer has the best odds of being self contained and people make a full recovery. If you need to take Synthroid, definitely keep a symptom list with your dosage….it is very easy to think the symptoms are from other causes but collectively they are usually associated with too high or too low of a dose of medication.
Good luck!