← Return to Worried this might be anal cancer

Discussion

Worried this might be anal cancer

Colorectal Cancer | Last Active: 17 hours ago | Replies (67)

Comment receiving replies
@samclembeau

i am about to start proton radiation for anal cancer caused by the hpv 16 virus.
i thought for months that i had hemorrhoids but the gyn said i needed a colonoscopy to make sure and i was lucky to get one within a couple of months.
the dr. was there when i came to and said it looked like squamous cell cancer but i had to wait for the results of the biopsy. was inconclusive. second biopsy at UCSF also inconclusive so wend to a surgeon who i had hoped would just remove it, but was on the sphincter muscle so just took a biopsy. this time it was biopsied as cancer. had pet scan that verified it as stage 2. it is usually a slow growing cancer so i thought i had time to determine how i was going to have it treated. i was wrong. the pain got much worse and felt like my rectum was closing up on me. the only way i can go to the bathroom is if i have diarrhea. so my advise, for what is is worth, is the get going as soon as possible before it gets worse. i am now at stage 3 almost stage 4. (involves 2 lymph nodes). Less than a year later.
i don't know where you are located, but have found that most institutions do only regular photon radiation for anal cancer , even if they they have proton at that hospital. i found, because of another person here on mayo clinic connect, someone that went through this and found california proton cancer center where that is all they do. they are affiliated with UCSD and Scripps.
i hope this helps you decide what to do. don't wait. it doesn't get better on its own.

Jump to this post


Replies to "i am about to start proton radiation for anal cancer caused by the hpv 16 virus...."

I though the pain I felt was due to hemorrhoids too. I saw the doctor a couple of times and she just prescribed some creams and never examined me. Finally the pain was so bad I could barely sit. I insisted on a colonoscopy and that’s when the cancer was found. Six weeks of chemo and six weeks of radiation and the cancer was still there. It had shrunk, but was still there. A PET scan had shone it was there and growing. A few months later a MRI was done and it showed the cancer was finally gone. I learned that PET scans are not always accurate. This past October I had a colostomy and I finally have my life back. I know this cancer can come back. My next MRI is already scheduled. My surgeon was excellent. He’s at Mayo Clinic in Florida.