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Severe Stenosis - Doc advises surgery

Spine Health | Last Active: Jan 23 10:05pm | Replies (64)

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@jenniferhunter

@kdks99 Instead of asking specifics and statistics of “how many” patients experience a particular result, it may make more sense to ask “why” an outcome occurs or “what” other health issues or patients not following medical advice contribute to a negative result. You could also ask how your condition may change over time without surgery. It may help to work with a physical therapist so you can ask these questions there as well. PT’s who have experience rehabbing surgical patients are a great source of information. You also need to have a mind body connection to be able to understand in 3 dimensions how your body works physically and what limits you. That may help in your decision.

There are too
many variables for surgeons to predict exactly what your experience will be and if they did that, it probably would set a precedent that could bring on a legal challenge from anyone who wants to complain.

Here is simple example not related to medicine. How many gallons of paint does it take to paint a house and can that be predicted exactly? It depends on coverage and square footage. Does everyone paint exactly the same way and same thickness? No. Using a roller vs a brush, which one absorbs and holds onto more paint causing a bit of waste? How does the weather affect the job? Did it rain and wash away paint that wasn’t dry? How does humidity or lack of it affect drying time and paint layer thickness? Did any paint get accidentally spilled?

It is impossible to predict exactly how much paint and time are required in this example. You can estimate it and when you don’t have enough to finish the job, you can go back to the store.

You have to trust yourself to make the best decision that you can. If you know why problems occur, you may know how to avoid them or to lessen your chances of it. Surgery is a compromise and it has a risk to benefit ratio. That is what the doctor is telling you with statistics. Ask how you can improve your chances to have a great outcome and what you can do to assist in that outcome. I think your surgeon will be more receptive to that question. They put their reputation at stake with every surgery and they don’t want a bad outcome for you or themselves.

In the end, it is your decision.

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Replies to "@kdks99 Instead of asking specifics and statistics of “how many” patients experience a particular result, it..."

Thank you for your comments. I have seen multiple physical therapists. The most experienced with spine patients said " very very few people should get spine surgery" All the other PTs I've seen were totally noncommittal. Yes I want to be able to make a risk/benefit analysis before deciding but I need information in order to do that and it is very hard to get the information that would facilitate my ability to make an informed decision. How can I trust myself to decide without information?

I guess I keep looking for a surgeon who will provide information and communicate in an open and forthcoming manner. If I could find this person I'm sure I could make the best decision knowing that there are no guarantees with any surgery.