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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 1 day ago | Replies (6914)Comment receiving replies
Hi everyone, it's been a while since I've been here and just thought I'd drop by with my 2 cents worth. Like most of you, I too have neuropathy. I am in the early stages and I noticed my feet getting a little worse lately. It feels like I always have socks on even when I don't. and if I walk bare foot they feel like I am walking on small soft pellets. I have not had the burning and swelling that I have heard a lot complain about, not yet anyway. My legs are what is painful to me. Sometimes the pain is so bad it wakes me from a sound sleep and involves my entire body, at those times , I find it hard to move, to even roll over to get something to take out of my bed side stand. Dr. has me on gabapentin 300 mgs, 4 at night and 2 in the am. Also is trying me on Diclofenac cream but hasn't done much good that I can notice. I have Tramadol tabs but there again doesn't help a whole lot. I am having 3 different types of pain and I think that is adding to the difficulty in treating me. I have back surgery in 2017 and didn't help, it didn't make it any worse just didn't help. I have severe spasms in my lower back that stop me in my tracks. I take muscle relaxants and I do have some relief with them. I also have pain from arthritis, I have it is my back, both hips, both shoulders, neck and right knee, then there is the neuropathy pain. There are days I can barely make it to the bathroom and at the time of this writing they haven't found much that helps any of it. My daughter also has neuropathy and complains of pain far more than I do, I have no doubt that hers is much worse than mine is. I was searching the web for ideas on natural pain meds, I came across one called Kratom, has anyone ever tried it? I want to try it but with so many medication being discouraged in older adults, have decided to wait and see if anyone else has tried it first. I sent for it and it is sitting in my drawer un opened. From what I am understanding, it's very effective, all natural and works like an opioid. I hope everyone finds something that works for them and I hope when they do, they will share it with this group. In the mean time I wish everyone to be safe and as happy as possible.. thanks for letting me share my 2 cents worth... Jeanie
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@jeanie26
Hi Jeanie, I am sorry to hear that you and your daughter both suffer this awful pain from neuropathy. Linda, my wife, does as well. To get to the point of your post, yes, Linda has used kratom. We found out about it from Lori, another member, @lorirenee1 , who uses it extensively, probably at least 3-4 times per week I believe and she swears by it. Lori recommended a company named Etha that sells very pure kratom, so I bought a few sample bags of the pills ( which are pure kratom -no additives) for starters and it did help the pain. Linda's problem with it is that it seems to make her kind of out of it, and this effect lasts for many hours. If she takes it in the evening, it cuts the pain way down, then she goes to bed, and in the morning the "out of it" feeling persists on into the next day. So for this reason she is reticent to use it unless she is desperate. Linda's go-to is marijuana. She uses that more than anything else (about 3-4 days per week I would estimate) to get pain relief. But you can find more info about kratom on Connect by using the search window at the top of the page you are reading and enter the word kratom and you should find lots of references. There is also a lot of info online. The Etha company has some, and it's website is ethanaturals.com.
I hope your leg pain does not progress further. Linda's PN pain is in her feet, and they BURN like crazy, all day most days. This is no fun for her, or for me for that matter. Good luck Jeanie, my best to you. Hank