I am so sorry to hear everything that you are going through. I do live in pain every day and my usual pain level is about a four or five. Once in a great while I’ll be surprised, and it will be a little less but when it goes worse, it just seems unbearable. I have not had any surgeries yet because of it but I think I may be getting close. And I feel like winter where I am or not helpful but I think it’s really just just the disease.
I will certainly say prayers for you as, it makes me so upset that so much of the literature I have read they say that it’s a little pain. If it wasn’t for this website and one other that I had been on, I would never have known that others are in such pain.
There is one other patient at my pain management clinic that has dish. He and I have talked and he said that his is a little better with some weight loss. I have been heavy since I’ve been a toddler and when I did lose weight in my mid 30s, it was a second job , it took not just Weight Watchers but it also was a lot of blood sweat and tears in the gym every day for hours for 5 yrs. . Of course now looking back a lot of that plus all the regular things that I have done to take care of my own home have probably all combined to tear my joints & body apart. Even though I only found out about this a few years ago, I knew something was going on. Even when I was 40 years old and went to the spine specialist he asked me how old I was. I told him you have the chart in front of you, and he said, it says you’re 40 years old. And I said I am, he said your spine tells me you’re significantly older. And that And he said, it says you’re 40 years old. And I said I am he said your spine tells me your significantly older. And that was 16 years ago. I had to give up playing golf a few years ago.
But I do need to get back into the pool even just to move around a bit. I used to swim laps at the local Y. But now it’ll just be a little aqua, jogging and stretches and maybe some deep water walking. But I don’t feel like the future is going to be great for me as far as my body goes. I will continue to pray for all of us for some pain relief. 🙏❤️‍🩹