Julie,
My tumor is in the head of the pancreas. I also had intense jaw pain like you described. During my 2nd chemo infusion, I had cramping in my hands and cramping in my cheek muscles (was hard to form words when talking). From the beginning of my Folfirinox chemo treatments, my oncologist reduced my oxaliplatin to 50% because of it. At my 8th chemo, I just didn't feel like I could continue the oxaliplatin because of the increasing jaw pain, and increasing neuropathy in my feet, so I did the Folfirinox without the oxaliplatin. For my 9th chemo, they switched my chemo plan to gemzar/Abraxane. (They didn't want to continue giving me the Folfirinox without the oxaliplatin) The side effects of the gemzar/Abraxane have been much less for me-I don't know if it was the right decision to stop the oxaliplatin, but it was a decision I felt I needed to make at the time. My C19 has continued to go down with the Gemzar/Abraxane. I have one more treatment, before surgery. (12 total treatments). I am very nervous about surgery. My 12th chemo is Jan 18th. I will have CT and PET scan on Jan 30, 31.
Wishing you the best.