1. < Neuroendocrine Tumors (NETs)

Anyone have bouts of severe sweats accompanied by muscle weakness

Posted by lindaldotson @lindaldotson, Jan 7 8:24am

Diagnosed with NETs in liver end of 2022. Had TACE procedure to largest tumor last May. MRIs every three months. Primary cancer site undiscovered. Have had more than one bout of severe sweats with severe muscle weakness resulting in temporary mobility dimishment. Had to remain totally immobile for about 30 minutes, possibly longer. Had muscle weakness and overall fatigue the following day. Always second guessing if NET related or some sort of virus; although, doubt the latter as has occurred too often for that, I think. Any feedback appreciated.

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hollywood817 | @hollywood817 | Jan 8 9:25am

Post chemo I had terrible night sweats. Sometimes I changed clothes 5x in the night. They stopped approx 8 weeks after last chemo treatment. I didn't have any noticeable muscle weakness.
Again, I believe my sweats were chemo and not directly NET related.
Good luck with your journey....it's been 54 weeks since I was diagnosed with Liver NET. Onward and upward, and always with positive energy!

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1 reply
lindaldotson | @lindaldotson | Jan 8 9:35am
In reply to @hollywood817 "Post chemo I had terrible night sweats. Sometimes I changed clothes 5x in the night. They..." + (show)
@hollywood817

Post chemo I had terrible night sweats. Sometimes I changed clothes 5x in the night. They stopped approx 8 weeks after last chemo treatment. I didn't have any noticeable muscle weakness.
Again, I believe my sweats were chemo and not directly NET related.
Good luck with your journey....it's been 54 weeks since I was diagnosed with Liver NET. Onward and upward, and always with positive energy!

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Thank you for your response. I'd been told "flushing" might be a part of the liver NETs. I've intermittently had them. Yes, it's another life adventure. Good to interact with others. May I ask, are your NETs in your liver? How long have you been diagnosed? Thank you.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jan 14 9:43pm
In reply to @lindaldotson "Thank you for your response. I'd been told "flushing" might be a part of the liver..." + (show)
@lindaldotson

Thank you for your response. I'd been told "flushing" might be a part of the liver NETs. I've intermittently had them. Yes, it's another life adventure. Good to interact with others. May I ask, are your NETs in your liver? How long have you been diagnosed? Thank you.

Jump to this post

Hi @lindaldotson, there are few discussions about flushing in the group. See these:
- Neck and face red flushing
https://connect.mayoclinic.org/discussion/neck-and-face-red-flushing/
- Flushing after NET surgery
https://connect.mayoclinic.org/discussion/flushing-after-net-surgery/
Sounds like your experience might be different from flushing?

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Laurell | @laurell410 | Apr 12 8:37pm

Yes but at 1st I contributed it all to menopause but daily I have this shaking sweating and overall feeling like crap for a few minutes and than it goes away. Possibly flushing syndrome

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