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What helps spinal stenosis besides surgery?

Spine Health | Last Active: 1 day ago | Replies (193)

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@jenniferhunter

@wil24 Hi Susan. Thank you for reaching out. It is actually a good thing that you are not being rushed into surgery. Perhaps your surgeon wanted to exhaust all options first before proceeding to surgery. I'm guessing that your follow up at Mayo will be with this new MRI and to discuss the findings and changes since the prior imaging?

When I came to Mayo and saw Dr. Fogelson, I had been dismissed by 5 locals surgeons who just didn't understand how my symptoms were related to my imaging. I spent 2 years trying to get help locally and worrying about having permanent damage and they wouldn't offer to help. I also would not want a surgeon guessing if they didn't understand the problem. Sometimes, you just need to get several opinions before finding the right surgeon with a good plan of care. This is my surgeon at Mayo, and he is excellent at his techniques and at helping patients feel at ease.
https://www.mayoclinic.org/biographies/fogelson-jeremy-l-m-d/bio-20055624
You don't have to agree to do spine injections or take pain medications. Those are your choices as a patient, and it may be that your insurance company wants to see this as justification that surgery is necessary. When PT fails to improve your condition, it also says that surgery may be needed. I know it is frustrating. Problems with legs do happen with cervical spine issues with spinal cord compression. There may also be lumbar spine issues contributing to leg pain, but in my case, there was not a lumbar issue, and leg pain was generated only by the cervical area due to stenosis in the central canal. That was the symptom I had that confused so many surgeons before I got to Mayo. That is called "funicular" or referred pain.

What you can do to make the most of your appointment is to write a list of questions that you have. The motto at Mayo is "the needs of the patient come first", so your surgeon should listen to your concerns. Make sure you ask direct questions because they don't know what you are thinking unless you tell them. It is always worth asking how your condition will progress without surgery and how fast, and if and when permanent damage occurs. That may be very hard to answer. If your surgeon knows that you want to fix this with surgery and will follow advice, they may be more willing to listen. Every case is different and the surgeon has to qualify you for a procedure and consider other diagnoses that could be confused with spine symptoms to make sure to cover all the possibilities.

When you have spinal fusions, it usually increases the chances of the levels adjacent to the fusion developing damage from the increased stress on them, so that may be a reason the surgeon is waiting. Adjacent segment problems do also happen after artificial disc replacements, and to patients who have not had any spine surgeries. It may be that the risks are a bit higher with fusions. There is a right time to do surgery, and after that, you do your best to maintain what you have, and not increase chances of future problems.

Would you share your experience after your follow up at Mayo?

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Replies to "@wil24 Hi Susan. Thank you for reaching out. It is actually a good thing that you..."

Hello Jennifer, thank you For Getting back to me. I was looking back @ my medical notes in 2018 versus 2021 and my condition now is Stenosis in Central Canal when starting out in 2013, I had just herniated disc, and well now it Progressed as I explained, and My Surgeon in 2021 wil be the same when I go next week, which he did State he wanted me doing injections back then " I apparently declined them, and my husband, said I did lengthy PT, and dry needle, plus my husband reminded me that, Surgeon did discuss trying all aspects and that the injections will be my last to determine, surgery, which I really would like to steer clear of. I just fear turning wrong at my Job, when i return, which is very physical lifting 1lb to 125lbs consecutively with throwing cases on average of 10,000 per hr and unloading semi- trailers. I was told by my family doc that eventually if Stenosis is severe enough, risk for paralysis. Plus my time on Short-term disability I have been looking for and easier profession. I too have many List's of questions to be addressed, and long term and short term outcomes of either surgery or just injections. I just know what injections can do for pro long periods and pray that maybe one and done. In closing I am glad you responded, and yes I would share my 3rd visit after the 25th of this month. Possibly may even have my intake nurse see if I can also get 2nd opinion from your previous Surgeon. Thank you for your time!
Susan 😀🙂

In reply to @wil24…. Although I have very high regard for Mayo (Rochester) as I see a number of specialists there, I went for that 2nd opinion regarding L4-5 after working with the specialist at Mayo for 2 years. I did all the conservative treatments, but when he suggested radio frequency ablation-I asked what its purpose was and the answer did not address anything but perhaps a lessening of pain, but not the issue of my collapsed disc. I found an excellent spine surgeon at a different location: attempted a spinal injection (no improvement); and then proceeded to surgery. I had a decompression, fusion of the L4-5. It was an excellent choice for me and I followed all post operation restrictions for a long time. I feel very good and no longer suffer daily, unmanageable pain. I do not know what the future holds, but today is very good. Thought you’d might like to hear a story of success when finding a positive other opinion that works. Good luck with whatever direction you choose as there are no guarantees.💕