Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@faithwalker007

Okay people, I don't know if there is anyone here from Wyoming or not, but if there is, can you please CONTACT me privately?

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Sorry Renee, One state south of you in New Mexico! Just out of curisoity where in Wyoming? Beautiful State!
from the Land of Enchantment!
Sundance(RB)

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@sundance6

Sorry Renee, One state south of you in New Mexico! Just out of curisoity where in Wyoming? Beautiful State!
from the Land of Enchantment!
Sundance(RB)

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The eastern side in the foothills of the Wyoming Black Hills! Just south of Devils Tower!

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@sundance6

Renee, I learned years ago in some lecture or read it how when you are nice to someone and recognize them for who they are ,the Love and Joy comes back to you Ten Fold! I was shopping for stuff for my Grandson a while back. As we were checking out I noticed the cashiers name and Thanked Her very much for her service and Help! Her Eyes lit up! It made myself light up also seeing the Joy in her face!
As we got to the car he asked me why I did that, I told him we have to appreciate everyone and show them kindness and respect! It's "GOOD KARMA"!
From, The Land of Enchantment!
Sundance(RB)

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It can literally change the way a person’s entire day is going. We may think it’s nothing or a waste of time but to someone else it can mean the world - or to some, life and death.

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@sundance6

Hank, MayoConnect and the people who subscribe and post are who saved my Life 2 years ago! Living alone and the quaretine, It gives me so much strength to read and talk to everyone on here!
From, The Land of Enchantment
Sundance(RB)

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I don’t live alone but I might as well be in quarantine. I can’t get out that much. I love to read posts here.

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Happy New Year to all!

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@faithwalker007

I don’t live alone but I might as well be in quarantine. I can’t get out that much. I love to read posts here.

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@faithwalker007 @sundance(RB)
As long as you've brought this up I want to take this opportunity to recognize what a gem Mayo Connect is. I think what makes Connect so exceptional of a forum is that it is so well maintained! The fact that there are dedicated moderators, several, not just one, who watch out what goes on here, keeps the riff raff out and stays aware of what people are saying, watching out for new members, etc. is so unusual. I think it's just part of the whole "class act" that Mayo is and has always been since it's founding. I do not have a great deal of previous experience with online forums but I know this is not typical. Thanks to everyone who works for Mayo on this site, and that includes all the volunteer mentors as well. You, obviously, know who you are. What a service this site is!!! When we are out shopping my wife always picks the highest quality item. She says to me "Why not get the best?" Yup, I have learned this from her (my dad always went for the cheapest). Well Mayo Connect, you are the BEST! Hank

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@jesfactsmon

@faithwalker007 @sundance(RB)
As long as you've brought this up I want to take this opportunity to recognize what a gem Mayo Connect is. I think what makes Connect so exceptional of a forum is that it is so well maintained! The fact that there are dedicated moderators, several, not just one, who watch out what goes on here, keeps the riff raff out and stays aware of what people are saying, watching out for new members, etc. is so unusual. I think it's just part of the whole "class act" that Mayo is and has always been since it's founding. I do not have a great deal of previous experience with online forums but I know this is not typical. Thanks to everyone who works for Mayo on this site, and that includes all the volunteer mentors as well. You, obviously, know who you are. What a service this site is!!! When we are out shopping my wife always picks the highest quality item. She says to me "Why not get the best?" Yup, I have learned this from her (my dad always went for the cheapest). Well Mayo Connect, you are the BEST! Hank

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So Very True!
Sundance(RB)

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@faithwalker007

It can literally change the way a person’s entire day is going. We may think it’s nothing or a waste of time but to someone else it can mean the world - or to some, life and death.

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It's so Easy to pass a Little Kindness along to Others!
Sundance(RB)

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Hello to Colleen and to all who share with me the frustration of dealing with chronic pain. If all I get is a bit of support from this forum, I will be happy. I HAVE gotten a bit more than that already by reading some of the stories on here. I am 64 years old and getting ready, on top of everything else, to deal with signing up for Medicare. I need to find someone to help me navigate that because of my healthcare needs. I live with chronic back, neck and knee pain that has gotten worse in the last few years. I also have rheumatoid arthritis and osteopenia. I have a wonderfully supportive husband but really worry that all of my ailments and lack of enthusiasm for doing things that we enjoy, are going to take a toll on our relationship. I have had to all but give up on things that I personally enjoy. Now with Covid complicating things, it seems like there is no end in sight. I still work full time and have a somewhat physically demanding job. But I need the exercise it provides as well as the income and great medical benefits. I got through laryngeal cancer in 2016 and this year I am 5 yrs clear of cancer! I am a fighter but I am getting older and tired. I am sick of treading to the pain specialists office monthly for my meds and hate needing those meds. I feel like one of the cattle in the paddock when I go there. I don’t feel that I have any control over that part of my life and am at their mercy. Waiting for hours to be seen for 5 minutes just to get a piece of paper feels degrading! Have had three back surgeries, one of which was a fusion. The levels above the fusion are causing issues so I am trying nerve ablation to ease the pain. Had my numbing trial today and it went well so I hope that it will give me some relief. My next steps in the future are either another fusion or trying nerve stim device in my back. I just want to be able to put it off until retirement. My hubby and I want to retire and go cruising on a sailboat until we can’t do it anymore. I worry that I may not realize our dream. That breaks my heart. If the pain issues get under control, then I can be free to sail off into the sunset! I can’t do that if I need to check in for scripts every month. So, sorry this is long, but my story, like so many others I feel sure, is long and complicated. Just being able to talk about it feels good. Thank you for having a venue where people like me can talk, get help finding answers and where we can all support each other.

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@popeyegurl

Hello to Colleen and to all who share with me the frustration of dealing with chronic pain. If all I get is a bit of support from this forum, I will be happy. I HAVE gotten a bit more than that already by reading some of the stories on here. I am 64 years old and getting ready, on top of everything else, to deal with signing up for Medicare. I need to find someone to help me navigate that because of my healthcare needs. I live with chronic back, neck and knee pain that has gotten worse in the last few years. I also have rheumatoid arthritis and osteopenia. I have a wonderfully supportive husband but really worry that all of my ailments and lack of enthusiasm for doing things that we enjoy, are going to take a toll on our relationship. I have had to all but give up on things that I personally enjoy. Now with Covid complicating things, it seems like there is no end in sight. I still work full time and have a somewhat physically demanding job. But I need the exercise it provides as well as the income and great medical benefits. I got through laryngeal cancer in 2016 and this year I am 5 yrs clear of cancer! I am a fighter but I am getting older and tired. I am sick of treading to the pain specialists office monthly for my meds and hate needing those meds. I feel like one of the cattle in the paddock when I go there. I don’t feel that I have any control over that part of my life and am at their mercy. Waiting for hours to be seen for 5 minutes just to get a piece of paper feels degrading! Have had three back surgeries, one of which was a fusion. The levels above the fusion are causing issues so I am trying nerve ablation to ease the pain. Had my numbing trial today and it went well so I hope that it will give me some relief. My next steps in the future are either another fusion or trying nerve stim device in my back. I just want to be able to put it off until retirement. My hubby and I want to retire and go cruising on a sailboat until we can’t do it anymore. I worry that I may not realize our dream. That breaks my heart. If the pain issues get under control, then I can be free to sail off into the sunset! I can’t do that if I need to check in for scripts every month. So, sorry this is long, but my story, like so many others I feel sure, is long and complicated. Just being able to talk about it feels good. Thank you for having a venue where people like me can talk, get help finding answers and where we can all support each other.

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Dear, popeyegrul, Please don't worry about getting signed up for Medicare! Piece of cake! Depending on which state you live in you must first Google Medicare and then sign up. They'll ask for some personel information. I can't remember because it was 10 years ago for me.
I don't know if they will do it, but maybe the first I would do is to Google Medicare Advantage Plans for your state. A representative may even help you sign up for basic Medicare sign-up. That is just a guess on my part! But irregardless I think it is a MUST to do the Medicare Advantage Plan! It will cover behond what Medicare covers.
Many of these plans go the extra mile for you on medications, ER coverage, In and Out patient coverage,and many other things. If you are still working be smart enough, do not get taken by a fast talking representative! Shop around! There are even sites that will give you a comparisons of all the providers in your state,that is important because different states have different coverage per state.
The next most important thing is to make sure which ever carrier you go with that your Primary Care Doctor takes that company. Also if you have been to a certain hospital that you are comfortable with that the carrier covers that hospital.
To sum that part up, 1. Have a list of you health care providers that you use. 2. Have a list of hospitals and medical facilities you deal with, make sure the company deals with them 3. I forgot medication providers. By this I mean if you have your prescriptions filled at a certain pharmacy, make sure they take you new Medicare Advantage Provider, deals with that pharmacy, plus many pharmicies give some medicines at "No Charge" for filling certain basic medcines. In my area Kroger Markets do this for a couple of my daily scripts.
Some companies that offer Medicare Advantage are Aetena, United, Humana, Blue Cross/ Blue Shielld. I know AARP you get a discount on memebership and price of coverage. Advantage does cost you per month but it is well worth it. I pay $125 a month that is deducted out of my Social Secuirty check. If your not taking a SS I'm not sure how that works. The companies will let you know. PLEASE SHOP AROUND!
Along with medicine coverage some have a co-pay or maximum amount of medicine over a certain time frame usually for a year!
My suggestion is sign up for one of the medication companies like GoodRx who I use. I have found soometimes that GoodRX is sometimes even cheaper than my insurance! Be Proactive and learn what you can about all of your medical help!
If I think of anything in the morning overnight I will answer you back! If you have any questions , please ask, if I know the answer or tell you where to check I will let you know!
LAST, MOST IMPORTANTLY, CONGRATULATIONS FOR BEING A SURVIVIVOR! YOU HAVE JOINED A GORUP OF PEOPLE WHO ARE FIGHTERS!
WE ARE A SPECIAL GROUP OF PEOPLE WHO HAVE BEEN THROUGH SOME OF THE HARDEST PARTS OF LIFE! IN MOST CASES WE ARE VERY GROUP OF COMAPSSIONATE GROUP OF PEOPLE WHO SHOW COMPASSION AND UNDERSTANDING OF OTHERS!
From, The Land of Enchantment!
Sundance(RB)

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