Hi, Julie:
This comment woke me up: "My cheeks have a sensation that feels like I’ve had dental work/novacain that comes and goes. Anyone else get that?"

Tell your team!

I also had oxaliplatin with my chemo and some people (as I understand it - I am NOT a medical pro), depending on dosage amounts, will have greater susceptibility to neuropathy. Everyone reacts differently. Starting with my 7th infusion I began to feel some mouth and tongue numbness in addition to the neuropathy in my feet and hands. I forgot to mention it to my PA prior to my 8th infusion (brain fog). Shortly after my 8th infusion I answered a phone call from a friend and found I was not able to speak clearly. I simply couldn't get my tongue to work. Again, I completely forgot about it as the worst of the symptoms would subside a bit after about 10 days. When speaking with my PA prior to my 9th infusion, I apologized for not speaking as clearly as I should. They promptly stopped that drug as part of "my" treatment. I'm not saying they will do that for you, again, "everyone" is different and I have no idea if what you are getting is what I received. But every one needs to track and note any and all symptoms, reactions to their therapy and inform their team.

What I have learned: With any odd, strange, uncomfortable symptom I had to WRITE IT DOWN! I had to tape those notes to the back of my phone! Seriously. It's really important to clearly let them know how you are responding. I should had done that when I started therapy. Also, regarding neuropathy, check to see how your feet are doing beyond just walking around. Flex your feet in all directions to see if the neuropathy is affecting any lower leg muscles. Sometimes just walking around doesn't tell the entire story and your team needs to know how "your" body is responding.

Wishing you the best with your treatment. At times it seems there's just too much to deal with, but somehow we do just that.

Julie,
My tumor is in the head of the pancreas. I also had intense jaw pain like you described. During my 2nd chemo infusion, I had cramping in my hands and cramping in my cheek muscles (was hard to form words when talking). From the beginning of my Folfirinox chemo treatments, my oncologist reduced my oxaliplatin to 50% because of it. At my 8th chemo, I just didn't feel like I could continue the oxaliplatin because of the increasing jaw pain, and increasing neuropathy in my feet, so I did the Folfirinox without the oxaliplatin. For my 9th chemo, they switched my chemo plan to gemzar/Abraxane. (They didn't want to continue giving me the Folfirinox without the oxaliplatin) The side effects of the gemzar/Abraxane have been much less for me-I don't know if it was the right decision to stop the oxaliplatin, but it was a decision I felt I needed to make at the time. My C19 has continued to go down with the Gemzar/Abraxane. I have one more treatment, before surgery. (12 total treatments). I am very nervous about surgery. My 12th chemo is Jan 18th. I will have CT and PET scan on Jan 30, 31.
Wishing you the best.