← Return to Found PNET on tail of pancreas but told it’s nonfunctional
DiscussionFound PNET on tail of pancreas but told it’s nonfunctional
Neuroendocrine Tumors (NETs) | Last Active: Jan 14 2:54pm | Replies (97)Comment receiving replies
Replies to "May I ask how big your tumor is?"
My tumor is 3.7 X 3.7 X 3.8 cm in the tail.
@tinerobison My wife was diagnosed with NET in April 22, with about a 3x5cm mass on tail of pancreas, with spread to liver with too many tumors to count. It was not operable at that point. But after 9 months of CAP/TEM chemo, she was able to get about 80% reduction in tumors in both areas, and allowed for surgery as your having, mass on pancreas removed, spleen removed, gall bladder removed, and debulked as many of the tumors on liver as possible. Since then PET scans are only showing the NET still in the liver, our medical team at Froedtert, has given us the option of a liver transplant this summer. We have completed 3 of 4 PRRT treatments to hopefully keep the NET only in the liver, a requirement for the transplant. Kim was a type 2 dietabetic before the surgery, and some that go through this surgery since the tail of pancreas controls the insulin your body gets, will need to monitor that possibly, but that isn't the case with all patients. Suggestions we have for you are to walk as much as you can after surgery as it will help you immensely with pain. My wife is 58, has a come a long way from a stage 4 diagnosis, to a very good chance to live many more decades. Follow your medical teams advice, ask alot of questions, and let us know how we can help with getting you through this. We all got you, you got this!